Wald Jonathan S, Shapiro Michael
RTI International, Durham, NC, USA.
Stud Health Technol Inform. 2013;192:622-6.
Personalized healthcare (PHC) is envisioned to enhance clinical practice decision-making using new genome-driven knowledge that tailors diagnosis, treatment, and prevention to the individual patient. In 2012, we conducted a focused environmental scan and informal interviews with fifteen experts to anticipate how PHC might impact health Information Technology (IT) policy in the United States. Findings indicatedthat PHC has a variable impact on current clinical practice, creates complex questions for providers, patients, and policy-makers, and will require a robust health IT infrastructure with advanced data architecture, clinical decision support, provider workflow tools, and re-use of clinical data for research. A number of health IT challenge areas were identified, along with five policy areas including: interoperable clinical decision support, standards for patient values and preferences, patient engagement, data transparency, and robust privacy and security.
个性化医疗（PHC）旨在利用新的基因组驱动知识来改善临床实践决策，为个体患者量身定制诊断、治疗和预防方案。2012年，我们进行了一次重点环境扫描，并与15位专家进行了非正式访谈，以预测PHC可能如何影响美国的健康信息技术（IT）政策。研究结果表明，PHC对当前临床实践有不同程度的影响，给医疗服务提供者、患者和政策制定者带来了复杂的问题，并且需要一个强大的健康IT基础设施，包括先进的数据架构、临床决策支持、医疗服务提供者工作流程工具以及临床数据用于研究的再利用。确定了一些健康IT挑战领域，以及五个政策领域，包括：可互操作的临床决策支持、患者价值观和偏好标准、患者参与、数据透明度以及强大的隐私和安全保护。
