Showell Chris, Turner Paul
eHealth Services Research Group, University of Tasmania.
Stud Health Technol Inform. 2013;192:1037.
Current approaches to designing, implementing and evaluating personal health record systems reflect the attributes and assumptions of well-educated and well to-do users (People like Us: PLUs) rather than the needs of the most disadvantaged in society (the disempowered, disengaged and disconnected: DDDs). These electronic systems for increasing accessibility to personal health information may accentuate rather than mitigate the emerging eHealth divide. Using a PubMed review of literature on personal health record systems, we identified only seven of 73 papers, and one of 29 abstracts which made specific mention of users who were disadvantaged by low literacy levels or difficulties with access to technology. This work is part of a larger study into personal health records and disadvantage.
当前设计、实施和评估个人健康记录系统的方法反映了受过良好教育且富裕的用户（像我们这样的人：PLUs）的属性和假设，而非社会中最弱势群体（被剥夺权利、脱离社会且与世隔绝的人：DDDs）的需求。这些旨在提高个人健康信息可及性的电子系统可能会加剧而非缓解新出现的电子健康鸿沟。通过对PubMed上关于个人健康记录系统的文献进行综述，我们在73篇论文中仅发现7篇、在29篇摘要中仅发现1篇特别提到了因文化水平低或获取技术困难而处于不利地位的用户。这项工作是对个人健康记录与弱势群体问题进行的一项更大规模研究的一部分。
