Skalla Karen A, Smith Ellen M Lavoie, Li Zhongze, Gates Charlene
Norris Cotton Cancer Center, Dartmouth-Hitchcock Medical Center, Lebanon, NH.
Clin J Oncol Nurs. 2013 Oct;17(5):500-6. doi: 10.1188/13.CJON.17-05AP.
This pilot study describes the multidimensional (physical, psychological, social, and spiritual) needs of caregivers of cancer survivors. A regional comprehensive cancer center and nine community-based rural and urban cancer clinics in New Hampshire assembled a convenience sample. Patients with cancer completed an online survey, the cancer survivor Web-based needs assessment survey (CS-WEBS), to identify needs and desire for intervention. Patients then identified a caregiver who was recruited to complete a caregiver version of the CS-WEBS. Caregivers reported challenges within all four domains of the survivorship model. The highest reported physical symptoms were fatigue, insomnia, and weight gain. Social symptoms included financial issues. Although visiting nurse services were the most commonly used resource, many caregivers used no supportive services. The most common caregiver task was listening and talking. Caregivers frequently experienced fatigue, anxiety, and insomnia. Exploring effective ways to alleviate their symptom burden should be a priority. Local and national attention should be directed toward easing the financial burden of caring for a patient with cancer.
这项试点研究描述了癌症幸存者照料者的多维度(身体、心理、社会和精神)需求。新罕布什尔州的一个地区综合癌症中心以及九个基于社区的城乡癌症诊所收集了一个便利样本。癌症患者完成了一项在线调查,即基于网络的癌症幸存者需求评估调查(CS-WEBS),以确定需求和干预愿望。患者随后指定一名照料者,招募其完成CS-WEBS的照料者版本。照料者报告了生存模式所有四个领域中的挑战。报告最多的身体症状是疲劳、失眠和体重增加。社会症状包括财务问题。尽管访视护士服务是最常用的资源,但许多照料者未使用任何支持性服务。最常见的照料者任务是倾听和交谈。照料者经常经历疲劳、焦虑和失眠。探索减轻他们症状负担的有效方法应成为优先事项。地方和国家应关注减轻照料癌症患者的经济负担。