Université Libre de Bruxelles, Faculté des Sciences Psychologiques et de l'Éducation, Brussels, Belgium.
Psychooncology. 2013 Jun;22(6):1389-95. doi: 10.1002/pon.3153. Epub 2012 Aug 8.
To investigate the prevalence of desire for formal psychological support of primary caregivers of patients with cancer and to identify caregivers' and patients' socio-demographic and psychological characteristics as well as patients' disease-related characteristics associated with this desire.
This is a multicenter, cross-sectional study assessing desire for formal psychological support among consecutive primary caregivers of patients with cancer. Patients and caregivers completed the Hospital Anxiety and Depression Scale and reported their desire for formal psychological support.
Two-hundred and eighty-two patient-caregiver dyads were assessed. Forty percent of patients had breast cancer, 16% had a hematologic cancer, 12% had a gastrointestinal cancer, and 32% had another solid tumor. Nineteen percent of caregivers reported desiring formal support, and 54% experienced moderate to high levels of distress. Regression analysis showed that caregivers' desire for formal support was negatively associated with caregivers' age (Exp(B) = 0.95; p < 0.001) and education levels (Exp(B) = 0.35; p = 0.032) and positively with caregivers' level of distress (Exp(B) = 1.08; p < 0.001) and with patients' desire for formal psychological support (Exp(B) = 2.54; p = 0.008). These variables only predicted 25% of caregivers who desire formal support.
One out of five caregivers desires formal psychological support although one out of two caregivers experiences significant levels of distress. The weak association between caregivers' desire for formal support and distress emphasizes the need to implement systematic screenings of both their distress and their desire for formal psychological support in oncology.
调查癌症患者主要照顾者对正式心理支持的需求，并确定与这种需求相关的照顾者和患者的社会人口学和心理特征以及患者疾病相关特征。
这是一项多中心、横断面研究，评估了连续癌症患者主要照顾者对正式心理支持的需求。患者和照顾者完成了医院焦虑和抑郁量表，并报告了他们对正式心理支持的需求。
评估了 282 对患者-照顾者。40%的患者患有乳腺癌，16%的患者患有血液系统癌症，12%的患者患有胃肠道癌症，32%的患者患有其他实体瘤。19%的照顾者报告希望得到正式支持，54%的照顾者经历了中度至高度的困扰。回归分析表明，照顾者对正式支持的需求与照顾者的年龄（Exp(B)=0.95;p<0.001）和教育水平（Exp(B)=0.35;p=0.032）呈负相关，与照顾者的困扰水平（Exp(B)=1.08;p<0.001）和患者对正式心理支持的需求（Exp(B)=2.54;p=0.008）呈正相关。这些变量仅预测了 25%希望得到正式支持的照顾者。
尽管有一半的照顾者经历了显著的困扰，但五分之一的照顾者希望得到正式的心理支持。照顾者对正式支持的需求与困扰之间的弱关联强调了在肿瘤学中系统筛查他们的困扰和他们对正式心理支持的需求的必要性。
