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探索中重度慢性阻塞性肺疾病患者的预先照护规划需求。

Exploring the advance care planning needs of moderately to severely ill people with COPD.

作者信息

Nguyen Marilyse, Chamber-Evans Jane, Joubert Alexandre, Drouin Isabelle, Ouellet Isabelle

机构信息

Field Nurse, Médecins Sans Frontières, 1470 Peel, Suite 220, Montréal, Québec, H3A 1T1, Canada.

出版信息

Int J Palliat Nurs. 2013 Aug;19(8):389-95. doi: 10.12968/ijpn.2013.19.8.389.

DOI:10.12968/ijpn.2013.19.8.389
PMID:23970295
Abstract

BACKGROUND

There is no clear consensus on how to approach advance care planning (ACP) with people with chronic obstructive pulmonary disease (COPD).

AIM

This study aimed to explore the perceived ACP needs of people with COPD and to investigate the usefulness of a DVD in meeting these needs.

METHODS

A qualitative descriptive design was used. Twelve people with moderate to severe COPD were interviewed in an outpatient clinic.

RESULTS

From the themes elicited, a mental model was created to demonstrate how the participants engaged in a process of mental work to accept their own mortality and subsequently engage in ACP.

CONCLUSIONS

Health professionals should not rely solely on illness severity to initiate ACP. Rather, patients from different illness categories should be approached, but with sensitivity to their emotional cues. Participants who were receptive to end-of-life issues enjoyed the DVD. The DVD is a good medium to facilitate discussion, but would be more effective if patients were screened for readiness prior to viewing.

摘要

背景

对于如何与慢性阻塞性肺疾病(COPD)患者进行预先护理计划(ACP),目前尚无明确共识。

目的

本研究旨在探讨COPD患者对ACP的感知需求,并调查DVD在满足这些需求方面的实用性。

方法

采用定性描述性设计。在门诊对12名中重度COPD患者进行了访谈。

结果

从引出的主题中,创建了一个心理模型,以展示参与者如何通过心理工作过程来接受自己的死亡,并随后参与ACP。

结论

卫生专业人员不应仅依赖疾病严重程度来启动ACP。相反,应接触不同疾病类别的患者,但要对他们的情绪线索保持敏感。接受临终问题的参与者喜欢这部DVD。DVD是促进讨论的良好媒介,但如果在观看前对患者的准备情况进行筛查,效果会更好。

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Int J Palliat Nurs. 2013 Aug;19(8):389-95. doi: 10.12968/ijpn.2013.19.8.389.
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Advance care planning uptake among patients with severe lung disease: a randomised patient preference trial of a nurse-led, facilitated advance care planning intervention.重症肺病患者的预立医疗计划接受情况:一项由护士主导、促进的预立医疗计划干预措施的随机患者偏好试验
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