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专家型患者的塑造:在线健康社区在关节炎自我管理中的作用

The making of expert patients: the role of online health communities in arthritis self-management.

作者信息

Willis Erin

机构信息

University of Memphis, USA

出版信息

J Health Psychol. 2014 Dec;19(12):1613-25. doi: 10.1177/1359105313496446. Epub 2013 Aug 29.

Abstract

Chronic disease is an epidemic, one that requires patients to play an active role in managing symptoms and disease affect. This study used ethnomethodology (N = 8231) to understand how patients with arthritis use online health communities to exchange disease-related information to better manage their chronic disease. The findings show that online health communities facilitate self-management behaviors through the exchange of health information and disease experience. These online health communities act as self-management programs led by peers with the same chronic disease through the exchange of health information based on experience, working to improve members' health literacy related to arthritis.

摘要

慢性病是一种流行病,它要求患者在管理症状和疾病影响方面发挥积极作用。本研究采用常人方法学(N = 8231)来了解关节炎患者如何利用在线健康社区交流与疾病相关的信息,以更好地管理他们的慢性病。研究结果表明,在线健康社区通过健康信息和疾病经验的交流促进自我管理行为。这些在线健康社区通过基于经验的健康信息交流,充当由患有相同慢性病的同龄人主导的自我管理项目,致力于提高成员与关节炎相关的健康素养。

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