Willis Erin
University of Memphis, USA
J Health Psychol. 2014 Dec;19(12):1613-25. doi: 10.1177/1359105313496446. Epub 2013 Aug 29.
Chronic disease is an epidemic, one that requires patients to play an active role in managing symptoms and disease affect. This study used ethnomethodology (N = 8231) to understand how patients with arthritis use online health communities to exchange disease-related information to better manage their chronic disease. The findings show that online health communities facilitate self-management behaviors through the exchange of health information and disease experience. These online health communities act as self-management programs led by peers with the same chronic disease through the exchange of health information based on experience, working to improve members' health literacy related to arthritis.
慢性病是一种流行病，它要求患者在管理症状和疾病影响方面发挥积极作用。本研究采用常人方法学（N = 8231）来了解关节炎患者如何利用在线健康社区交流与疾病相关的信息，以更好地管理他们的慢性病。研究结果表明，在线健康社区通过健康信息和疾病经验的交流促进自我管理行为。这些在线健康社区通过基于经验的健康信息交流，充当由患有相同慢性病的同龄人主导的自我管理项目，致力于提高成员与关节炎相关的健康素养。
