Associate Professor of Philosophy, Providence College, Providence, Rhode Island.
Yale J Biol Med. 2013 Sep 20;86(3):303-14. eCollection 2013 Sep.
This article examines the ethical issues surrounding the inclusion of people with intellectual disabilities as research subjects. It explores subject selection, competence, risk and benefits, and authority through three tensions that emerge when considering these concepts in the context of the Disability Rights Movement and critical disability scholarship. These tensions are defined as the double dangers of inclusion and exclusion; the challenges of defining competence and risk in terms of individuals vs. groups; and the conflicts that arise when pursuing the dual goals of amelioration and elimination of disabilities. Though these tensions are not resolved, they underscore the importance of researchers engaging with critical disability perspectives in order to navigate these complex ethical questions.
本文探讨了将智障人士纳入研究对象所涉及的伦理问题。它通过在残疾权利运动和批判残疾研究的背景下考虑这些概念时出现的三个紧张关系,探讨了受试者选择、能力、风险和利益以及权威。这些紧张关系被定义为包容和排斥的双重危险;用个体与群体来定义能力和风险的挑战;以及在追求改善和消除残疾的双重目标时产生的冲突。尽管这些紧张关系没有得到解决,但它们强调了研究人员与批判残疾观点接触的重要性,以便解决这些复杂的伦理问题。