Carneiro Lara, Vaičekauskaitė Rita, Kowalczyk Oliwia, Ćwirynkało Katarzyna
Physical Education Department, College of Education, United Arab Emirates University, Al Ain, Abu Dhabi, United Arab Emirates.
Klaipeda University, Klaipėda, Lithuania.
Int J Equity Health. 2025 Jan 6;24(1):3. doi: 10.1186/s12939-024-02366-2.
The European Commission's Strategy for the Rights of Persons with Disabilities 2021-2030 aims to ensure equal opportunities and rights for all individuals, including those with intellectual disabilities. People with intellectual disabilities are often underrepresented in cancer prevention and screening policies, leading to disparities in health outcomes and early mortality. The intersection of intellectual disability, cancer, and depression represents an underexplored area in healthcare research. Individuals with intellectual disability diagnosed with both cancer and depression face compounded challenges impacting their quality of life, proper access to medical care, and treatment outcomes. To address these gaps in the systems globally, a focused effort is indispensable to understand their unique needs and better tailor care strategies for this target group. Therefore, this commentary outlines the challenges in researching individuals with intellectual disabilities who have a dual diagnosis of cancer and depression. Challenges include providing informed consent, ethical researcher-participant relationships, and maintaining confidentiality and autonomy. Strategies for improvement include creating accessible procedures, raising awareness, and involving individuals with intellectual disabilities in research ethics committees.
欧盟委员会《2021-2030年残疾人权利战略》旨在确保所有人，包括智障人士，都能享有平等机会和权利。智障人士在癌症预防和筛查政策中的代表性往往不足，导致健康结果和过早死亡率方面存在差异。智障、癌症和抑郁症的交叉领域是医疗保健研究中一个尚未充分探索的领域。被诊断患有癌症和抑郁症的智障人士面临着复杂的挑战，这些挑战影响着他们的生活质量、获得适当医疗护理的机会以及治疗结果。为了在全球范围内弥补这些系统中的差距，必须集中精力了解他们的独特需求，并更好地为这一目标群体量身定制护理策略。因此，本评论概述了研究患有癌症和抑郁症双重诊断的智障人士所面临的挑战。挑战包括提供知情同意、建立符合伦理的研究者与参与者关系，以及维护保密性和自主性。改进策略包括创建无障碍程序、提高认识，以及让智障人士参与研究伦理委员会。
