a Clinical Psychology , School of Health and Medicine, Lancaster University , Lancaster , UK.
Psychol Health. 2014;29(2):162-76. doi: 10.1080/08870446.2013.840784. Epub 2013 Sep 27.
This study aimed to synthesise the illness narratives of individuals living with a pituitary tumour. Eight adults with a pituitary tumour were recruited from an endocrinology service in the north-west of England. A narrative methodology was adopted which investigated elements of the individual narratives such as metaphor and structure but which also aimed to produce a joint account of experience in this particular illness context by extracting themes across the stories; these are presented as part of a chronological narrative. However, the resulting group story was also analysed in terms of different types of narrative plots. The group narrative started from the recognition of symptoms and then diagnosis though treatment to post-treatment and future plans. In terms of narrative plots, one notable element of the joint narrative was the flow between the culturally dominant restitution narrative, where participants focused on treatment and recovery and the chaos narrative when recovery did not seem possible. The findings contain many elements consistent with previous research; however, the use of a celebrity figure to communicate about the illness experience and a perception that objects or individuals should not be taken at face value emerged as more novel findings.
这项研究旨在综合患有垂体瘤的个体的疾病叙事。从英格兰西北部的内分泌科门诊招募了 8 名患有垂体瘤的成年人。采用叙事方法，调查个体叙事的要素，如隐喻和结构，但也旨在通过从故事中提取主题来生成特定疾病背景下经验的共同叙述；这些作为按时间顺序叙述的一部分呈现。然而，由此产生的小组叙述也根据不同类型的叙述情节进行了分析。小组叙述从症状的认识开始，然后是诊断、治疗、治疗后和未来计划。就叙述情节而言，联合叙述中一个值得注意的元素是文化主导的恢复性叙述之间的流动，参与者专注于治疗和康复，以及当康复似乎不可能时的混乱性叙述。研究结果包含许多与先前研究一致的元素；然而，使用名人来传达疾病体验，以及认为物体或个人不应该被表面价值所左右的看法，是更具新意的发现。
