Evaluating Children's Health Outcomes (ECHO) Research Centre, Laurentian University, Sudbury, ON, Canada; Institute for Clinical Evaluative Sciences, Toronto, ON, Canada.
Evaluating Children's Health Outcomes (ECHO) Research Centre, Laurentian University, Sudbury, ON, Canada.
Arch Phys Med Rehabil. 2014 Mar;95(3):466-71. doi: 10.1016/j.apmr.2013.09.015. Epub 2013 Oct 2.
To describe current patterns of health care utilization of youth and young adults who have spina bifida (SB) and provide evidence to guide the development of health care for this growing population.
We conducted a secondary analysis of health services utilization data from the Canadian Institute for Health Information to determine the rates and patterns of health care utilization, because comprehensive health care has been recognized as critical to positive health outcomes.
Participants were identified from 6 publicly funded children's treatment centers.
Health records from youth (n=164; age range, 13.0-17.9y) and adults (n=120; age range, 23.0-32.9y) with SB contributed to this study.
Not applicable.
The rates of outpatient physician visits and hospital admissions for the youth and adult groups were calculated. The proportion with a "medical home" was also calculated.
The annual rates of outpatient physician visits per 1000 persons were 8031 for youth and 8524 for adults with SB. These rates were approximately 2.9 and 2.2 times higher, respectively, than for their age-matched peers. On average, 12% of youth and 24% of adults with SB had a medical home. The annual rates of hospital admissions per 1000 persons were 329 for youth and 285 for adults with SB. Rates of admissions were 19.4 and 12.4 times higher, respectively, for these groups than for the general population.
It appears that persons with SB are accessing health services more often than their age-matched peers, and few have a medical home. We recommend that seamless medical care be provided to all adults with SB, coordinated by a primary care provider, to facilitate comprehensive care.
描述患有脊柱裂（SB）的青年和年轻成年人当前的医疗保健利用模式，并提供证据以指导这一不断增长的人群的医疗保健发展。
我们对加拿大卫生信息研究所的卫生服务利用数据进行了二次分析，以确定医疗保健的利用率和模式，因为全面的医疗保健被认为对健康结果具有重要意义。
参与者是从 6 家公共资助的儿童治疗中心中确定的。
本研究纳入了来自患有 SB 的青年（n=164；年龄范围，13.0-17.9y）和成年人（n=120；年龄范围，23.0-32.9y）的健康记录。
不适用。
计算了青年和成年组的门诊医生就诊率和住院率。还计算了有“医疗之家”的比例。
青年组的门诊医生就诊率为每 1000 人 8031 次，成年组为每 1000 人 8524 次。这些比率分别比同龄人群高约 2.9 和 2.2 倍。平均而言，12%的青年和 24%的成年 SB 患者有“医疗之家”。青年组的住院率为每 1000 人 329 次，成年组为每 1000 人 285 次。与普通人群相比，这些组的住院率分别高 19.4 和 12.4 倍。
患有 SB 的人似乎比同龄人群更频繁地使用医疗保健服务，而且很少有人有“医疗之家”。我们建议为所有成年 SB 患者提供无缝医疗保健，由初级保健提供者协调，以促进全面护理。
