Hsu Shih-Yin, Yen Miaofen, Wang Ming-Chang, Chen Li-Kuang
Department of Nursing, College of Medicine, National Cheng Kung University, Taiwan, ROC.
Hu Li Za Zhi. 2013 Oct;60(5):64-72. doi: 10.6224/JN.60.5.64.
The majority of studies addressing chronic kidney disease (CKD) have been quantitative. The lived experiences of patients with early stage CKD have not been explored in the literature. Due to the lack of symptoms during the early stages of CKD, the progress of this disease is often ignored.
This study explores the lived experiences of middle-aged males diagnosed with CKD. Research focuses on the work experiences, interpersonal relationships, and dietary habits of this group.
This qualitative study used a narrative research method with purposive sampling. Ten middle-aged male patients were interviewed. We employed the 3 strategies of member checks, peer review, and debriefing in order to enhance the trustworthiness of the data analysis.
Four major themes were identified: (1) keeping the same life pace as usual with concerns of deterioration; (2) continuing to support their family and play the role of father; (3) hoping to participate in family and friend relationships despite the illness; and (4) being challenged to maintain a healthy diet.
CONCLUSIONS/IMPLICATIONS FOR PRACTICE: Although the physical status of participants was similar to the general middle-aged adult population, participants were concerned regarding disease deterioration. The results of this study suggest that health professionals: (1) provide appropriate information based on patients' personality, particularly at the first onset or apparent deterioration of the disease; (2) offer specialized healthcare information to patients relevant to their career choices; and (3) understand CKD-patient difficulties in daily life such as eating out habits and challenges faced in maintaining a healthy diet. Results may provide important information to healthcare providers in education planning and implementation and support programs for patients and families.
大多数关于慢性肾脏病（CKD）的研究都是定量研究。早期慢性肾脏病患者的生活经历在文献中尚未得到探讨。由于慢性肾脏病早期缺乏症状，这种疾病的进展往往被忽视。
本研究探讨被诊断为慢性肾脏病的中年男性的生活经历。研究重点关注该群体的工作经历、人际关系和饮食习惯。
本定性研究采用叙事研究方法和目的抽样法。对10名中年男性患者进行了访谈。我们采用了成员核对、同行评审和汇报这三种策略，以提高数据分析的可信度。
确定了四个主要主题：（1）在担心病情恶化的情况下保持与往常相同的生活节奏；（2）继续养家并扮演父亲的角色；（3）尽管患病仍希望参与家庭和朋友关系；（4）在保持健康饮食方面面临挑战。
结论/对实践的启示：尽管参与者的身体状况与一般中年成年人相似，但他们仍担心疾病恶化。本研究结果表明，卫生专业人员：（1）根据患者的个性提供适当的信息，特别是在疾病首次发作或明显恶化时；（2）向患者提供与其职业选择相关的专业医疗信息；（3）了解慢性肾脏病患者在日常生活中的困难，如外出就餐习惯以及在保持健康饮食方面面临的挑战。研究结果可能为医疗服务提供者在教育规划、实施以及为患者和家庭提供支持项目方面提供重要信息。
