晚期癌症预后意识的概念化：一项系统综述
Conceptualizing prognostic awareness in advanced cancer: a systematic review.
作者信息
Applebaum Allison J, Kolva Elissa A, Kulikowski Julia R, Jacobs Jordana D, DeRosa Antonio, Lichtenthal Wendy G, Olden Megan E, Rosenfeld Barry, Breitbart William
机构信息
Memorial Sloan-Kettering Cancer Center, USA
Fordham University, USA.
出版信息
J Health Psychol. 2014 Sep;19(9):1103-19. doi: 10.1177/1359105313484782. Epub 2013 Oct 24.
Abstract
This systematic review synthesizes the complex literature on prognostic awareness in cancer. A total of 37 studies examining cancer patients' understanding of their prognosis were included. Prognostic awareness definitions and assessment methods were inconsistent across studies. A surprisingly high percentage of patients (up to 75%) were unaware of their poor prognosis, and in several studies, even their cancer diagnosis (up to 96%), particularly in studies conducted outside of North America. This review highlights surprisingly low rates of prognostic awareness in patients with advanced cancer as well as discrepancies in prognostic awareness assessment, suggesting the need for empirically validated measures of prognostic awareness.
摘要
本系统评价综合了关于癌症患者预后知晓情况的复杂文献。共纳入了37项研究，这些研究考察了癌症患者对自身预后的理解。各研究中预后知晓情况的定义和评估方法并不一致。令人惊讶的是，相当高比例的患者（高达75%）并未意识到自己预后不良，在多项研究中，甚至对自己的癌症诊断情况也不知情（高达96%），尤其是在北美以外地区开展的研究中。本评价凸显了晚期癌症患者预后知晓率低得出奇，以及预后知晓情况评估存在差异，这表明需要有经过实证验证的预后知晓情况衡量指标。
相似文献
1
Conceptualizing prognostic awareness in advanced cancer: a systematic review.晚期癌症预后意识的概念化：一项系统综述
J Health Psychol. 2014 Sep;19(9):1103-19. doi: 10.1177/1359105313484782. Epub 2013 Oct 24.
2
Prognostic awareness and willingness to explore prognosis in older adults with cancer.老年人癌症患者的预后意识和探索预后的意愿。
J Geriatr Oncol. 2024 Jul;15(6):101810. doi: 10.1016/j.jgo.2024.101810. Epub 2024 May 31.
3
Current status of accurate prognostic awareness in advanced/terminally ill cancer patients: Systematic review and meta-regression analysis.晚期/终末期癌症患者准确预后认知的现状：系统评价与Meta回归分析
Palliat Med. 2017 May;31(5):406-418. doi: 10.1177/0269216316663976. Epub 2016 Aug 4.
4
Cost-effectiveness of using prognostic information to select women with breast cancer for adjuvant systemic therapy.利用预后信息为乳腺癌患者选择辅助性全身治疗的成本效益
Health Technol Assess. 2006 Sep;10(34):iii-iv, ix-xi, 1-204. doi: 10.3310/hta10340.
5
The experiences of family members in the year following the diagnosis of a child or adolescent with cancer: a qualitative systematic review.儿童或青少年癌症诊断后一年内家庭成员的经历：一项定性系统综述
JBI Database System Rev Implement Rep. 2015 Jun 12;13(5):293-329. doi: 10.11124/jbisrir-2015-1698.
6
Are Current Survival Prediction Tools Useful When Treating Subsequent Skeletal-related Events From Bone Metastases?当前的生存预测工具在治疗骨转移后的骨骼相关事件时有用吗？
Clin Orthop Relat Res. 2024 Sep 1;482(9):1710-1721. doi: 10.1097/CORR.0000000000003030. Epub 2024 Mar 22.
7
Mammographic density, endocrine therapy and breast cancer risk: a prognostic and predictive biomarker review.乳腺密度、内分泌治疗与乳腺癌风险：预后和预测生物标志物综述。
Cochrane Database Syst Rev. 2021 Oct 26;10(10):CD013091. doi: 10.1002/14651858.CD013091.pub2.
8
WITHDRAWN: Interventions for fatigue and weight loss in adults with advanced progressive illness.撤回：针对晚期进行性疾病成人患者疲劳和体重减轻的干预措施。
Cochrane Database Syst Rev. 2017 Apr 7;4(4):CD008427. doi: 10.1002/14651858.CD008427.pub3.
9
Interventions for fatigue and weight loss in adults with advanced progressive illness.针对患有晚期进行性疾病的成年人疲劳和体重减轻的干预措施。
Cochrane Database Syst Rev. 2012 Jan 18;1:CD008427. doi: 10.1002/14651858.CD008427.pub2.
10
Early palliative care for adults with advanced cancer.晚期癌症成年患者的早期姑息治疗。
Cochrane Database Syst Rev. 2017 Jun 12;6(6):CD011129. doi: 10.1002/14651858.CD011129.pub2.
引用本文的文献
1
Between host country and homeland: a grounded theory study on place of dying and death in migrant cancer patients.在侨居国与祖国之间：一项关于移民癌症患者死亡地点和死亡情况的扎根理论研究
BMC Palliat Care. 2025 Aug 8;24(1):220. doi: 10.1186/s12904-025-01821-3.
2
Prognostic awareness in family caregivers of patients with terminal illness: a scoping review.晚期疾病患者家庭照顾者的预后意识：一项范围综述
BMJ Open. 2025 Aug 1;15(7):e099132. doi: 10.1136/bmjopen-2025-099132.
3
Prognostic beliefs in patients with cancer receiving outpatient palliative care.接受门诊姑息治疗的癌症患者的预后信念。
Support Care Cancer. 2025 Apr 12;33(5):377. doi: 10.1007/s00520-025-09404-x.
4
What Have You Been Told? Awareness of Prognosis of Patients in an Italian Home Palliative Care Service.你被告知过什么？意大利居家姑息治疗服务中患者对预后的认知。
Palliat Med Rep. 2025 Feb 10;6(1):17-27. doi: 10.1089/pmr.2024.0072. eCollection 2025.
5
'I couldn't live without hope': A qualitative study using reflexive thematic analysis on approaches to hope and prognostic awareness among people with advanced disease.“没有希望我就活不下去”：一项质性研究，运用反思性主题分析法探讨晚期疾病患者的希望与预后意识。
Palliat Med. 2025 Apr;39(4):473-482. doi: 10.1177/02692163251323558. Epub 2025 Mar 12.
6
Depression, performance status, and discontinued treatment mediate an association of curability belief with prognosis in advanced cancer patients.抑郁、身体状况和治疗中断会影响可治愈信念与晚期癌症患者预后之间的关联。
Sci Rep. 2024 Nov 24;14(1):29098. doi: 10.1038/s41598-024-80687-6.
7
Serious Illness Communication in Cirrhosis Care: Tools to Improve Illness Understanding, Prognostic Understanding, and Care Planning.肝硬化护理中的重症疾病沟通：增进疾病理解、预后理解及护理规划的工具
Gastro Hep Adv. 2024;3(5):634-645. doi: 10.1016/j.gastha.2024.04.003. Epub 2024 Apr 16.
8
Prognostic awareness and willingness to explore prognosis in older adults with cancer.老年人癌症患者的预后意识和探索预后的意愿。
J Geriatr Oncol. 2024 Jul;15(6):101810. doi: 10.1016/j.jgo.2024.101810. Epub 2024 May 31.
9
Development and psychometric evaluation of the death risk perception scale for advanced cancer patients.晚期癌症患者死亡风险感知量表的编制及心理测量学评价。
BMC Palliat Care. 2024 May 29;23(1):136. doi: 10.1186/s12904-024-01467-7.
10
Question prompt list intervention for patients with advanced cancer: a systematic review and meta-analysis.晚期癌症患者的问题提示清单干预措施：一项系统评价和荟萃分析
Support Care Cancer. 2024 Mar 16;32(4):231. doi: 10.1007/s00520-024-08432-3.
本文引用的文献
1
PSA Velocity and Doubling Time in Diagnosis and Prognosis of Prostate Cancer.前列腺特异性抗原速度和倍增时间在前列腺癌诊断及预后中的应用
Br J Med Surg Urol. 2012 Jul 1;5(4):162-168. doi: 10.1016/j.bjmsu.2011.08.006.
2
Letting the cat out of the bag: shifting practices of cancer disclosure in Singapore.让秘密大白于天下：新加坡癌症披露实践的转变。
Singapore Med J. 2012 May;53(5):344-8.
3
Illness perceptions, adjustment to illness, and depression in a palliative care population.在姑息治疗人群中，疾病认知、疾病适应和抑郁的关系。
J Pain Symptom Manage. 2012 May;43(5):819-32. doi: 10.1016/j.jpainsymman.2011.05.013. Epub 2012 Jan 30.
4
Being aware of the prognosis: how does it relate to palliative care patients' anxiety and communication difficulty with family members in the Hong Kong Chinese context?了解预后情况：在香港中文背景下，它与姑息治疗患者的焦虑以及与家庭成员沟通困难有何关系？
J Palliat Med. 2011 Sep;14(9):997-1003. doi: 10.1089/jpm.2011.0099. Epub 2011 Jul 27.
5
Effect of advanced cancer patients' awareness of disease status on treatment decisional conflicts and satisfaction during palliative chemotherapy: a Korean prospective cohort study.晚期癌症患者对疾病状况的认知对姑息化疗期间治疗决策冲突和满意度的影响：一项韩国前瞻性队列研究。
Support Care Cancer. 2012 Jun;20(6):1309-16. doi: 10.1007/s00520-011-1218-5. Epub 2011 Jul 1.
6
Impact of awareness of terminal illness and use of palliative care or intensive care unit on the survival of terminally ill patients with cancer: prospective cohort study.癌症终末期患者的临终意识和姑息治疗或重症监护病房的使用对其生存的影响：前瞻性队列研究。
J Clin Oncol. 2011 Jun 20;29(18):2474-80. doi: 10.1200/JCO.2010.30.1184. Epub 2011 May 16.
7
Supporting treatment decision making in advanced cancer: a randomized trial of a decision aid for patients with advanced colorectal cancer considering chemotherapy.支持晚期癌症的治疗决策：一项针对考虑化疗的晚期结直肠癌患者的决策辅助工具的随机试验。
J Clin Oncol. 2011 May 20;29(15):2077-84. doi: 10.1200/JCO.2010.32.0754. Epub 2011 Apr 11.
8
Impact of cancer patients' disease awareness on their family members' health-related quality of life: a cross-sectional survey.癌症患者的疾病认知对其家庭成员健康相关生活质量的影响：一项横断面调查。
Psychooncology. 2011 Mar;20(3):294-301. doi: 10.1002/pon.1731.
9
Prognostic acceptance and the well-being of patients receiving palliative care for cancer.癌症姑息治疗患者的预后接受度与幸福感
J Clin Oncol. 2009 Dec 1;27(34):5757-62. doi: 10.1200/JCO.2009.22.9799. Epub 2009 Oct 13.
10
Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement.系统评价与Meta分析的首选报告项目：PRISMA声明。
J Clin Epidemiol. 2009 Oct;62(10):1006-12. doi: 10.1016/j.jclinepi.2009.06.005. Epub 2009 Jul 23.
Zotero 插件