Department of Medical Oncology, Center for Outcomes & Policy Research, Dana-Farber Cancer Institute, Boston, MA, USA.
J Comp Eff Res. 2013 Mar;2(2):117-25. doi: 10.2217/cer.12.80.
Stakeholder input is a critical component of comparative effectiveness research. To ensure that the research activities of the Developing Evidence to Inform Decisions about Effectiveness (DEcIDE) Network, supported by the Agency for Healthcare Research and Quality, translate into the greatest impact for everyday practice and policy-making in cancer, we were tasked with soliciting stakeholder input regarding priority areas in cancer-related comparative effectiveness research for the DEcIDE Cancer Consortium. Given the increasing emphasis on stakeholder engagement in research, many investigators are facing a similar task, yet there is limited literature to guide such efforts, particularly in cancer care. To help fill this gap, we present our approach to operationalizing stakeholder engagement and discuss it in the context of other recent developments in the area. We describe challenges encountered in convening stakeholders from multiple vantage points to prioritize topics and strategies used to mitigate these barriers. We offer several recommendations regarding how to best solicit stakeholder input to inform comparative effectiveness research in cancer care. These recommendations can inform other initiatives currently facing the challenges of engaging stakeholders in priority setting for cancer.
利益相关者的投入是进行比较效果研究的关键组成部分。为了确保受美国医疗保健研究与质量署支持的制定证据以告知效果评估网络（DEcIDE）的研究活动能够对癌症的日常实践和决策产生最大影响，我们负责征求利益相关者的意见，以确定 DEcIDE 癌症联盟中癌症相关比较效果研究的优先领域。鉴于人们越来越重视研究中的利益相关者参与，许多研究人员都面临着类似的任务，但在癌症护理方面，指导此类工作的文献有限。为了帮助填补这一空白，我们介绍了实施利益相关者参与的方法，并在该领域的其他最新发展背景下进行了讨论。我们描述了从多个角度召集利益相关者来确定优先事项和使用的策略来减轻这些障碍时遇到的挑战。我们提出了一些关于如何最好地征求利益相关者意见以告知癌症护理中的比较效果研究的建议。这些建议可以为其他目前面临在癌症优先事项设定中让利益相关者参与的挑战的计划提供参考。
