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两性畸形婴儿困境中的伦理决策

Ethical decision-making in the dilemma of the intersex infant.

作者信息

Lathrop Breanna L, Cheney Teresa B, Hayman Annette B

机构信息

Department of Nursing, Georgia Southern University , Statesboro, Georgia , USA .

出版信息

Issues Compr Pediatr Nurs. 2014 Mar;37(1):25-38. doi: 10.3109/01460862.2013.855842. Epub 2013 Nov 19.

Abstract

The Making Ethical Decisions about Surgical Intervention (MEDSI) tool is designed to guide health care professionals, patients, and families faced with ethically charged decisions regarding surgical interventions for pediatric patients. MEDSI is built on the principles of beneficence, nonmaleficence, and patient autonomy and created to promote truth-telling, compassion, respect for patient cultural and religious preferences, and appropriate follow up in the clinical setting. Following an overview of the 8 steps that compose MEDSI, the tool is applied to the management of intersex infants. The birth of a child with a disorder of sexual development (DSD) and ambiguous genitalia presents an ethically challenging situation for the family and health care team. The use of the MEDSI model is demonstrated in a case study involving the decision of surgical intervention in the management of an intersex child.

摘要

“关于外科手术干预的伦理决策”(MEDSI)工具旨在指导医疗保健专业人员、患者及其家属,他们面临着有关儿科患者外科手术干预的充满伦理争议的决策。MEDSI基于行善、不伤害和患者自主原则构建,旨在促进在临床环境中讲真话、同情、尊重患者的文化和宗教偏好以及进行适当的随访。在概述构成MEDSI的8个步骤后,该工具被应用于两性畸形婴儿的管理。患有性发育障碍(DSD)和生殖器模糊的儿童出生,给家庭和医疗团队带来了伦理挑战。在一个涉及两性畸形儿童管理中手术干预决策的案例研究中展示了MEDSI模型的应用。

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