Lua Pei Lin, Neni Widiasmoro Selamat, Lee Jimmy Kok Foo, Abd Aziz Zariah
Centre for Community Development and Quality of Life, Faculty of Medicine and Health Sciences, Universiti Sultan Zainal Abidin, Kuala Terengganu, Malaysia.
Hospital Sultanah Nur Zahirah, Kuala Terengganu, Malaysia.
Technol Health Care. 2013;21(6):547-56. doi: 10.3233/THC-130758.
Being well-informed and knowledgeable about their illnesses would be a great advantage to children with epilepsy (CWE). Subsequently, an effective education programme which could secure interest and simultaneously improve their awareness, knowledge and attitudes (AKA) is essential in enhancing well-being and health outcomes.
To describe the development of a new interactive animated epilepsy education programme (IAEEP) for children and to assess its feasibility, acceptability and practicality.
The IAEEP was developed by an interdisciplinary group of neurologist, paediatrician, pharmacist, biomedical scientist and educators which was based on two established epilepsy education programmes: the educational programme for patients with epilepsy and their relatives (MOSES) and the modular educational program for children with epilepsy and their parents (FAMOSES). CWE from paediatric department of three general hospitals in Terengganu were initially introduced to the IAEEP and were requested to complete an evaluation form assessing its feasibility, acceptability and practicality. Descriptive statistics were employed for data analyses (SPSS 20.0).
Sixteen CWE (median age=13.0; male=56.2%; Malay=81.2%; secondary school=56.2%) and their corresponding parents were recruited. Each CWE owned at least a computer/notebook/tablet (100%). The cost of distribution of IAEEP (in compact disc form) among CWE was estimated at about MYR 17.99/USD 5.90 per CWE. The average time required to interact with the programme was 22.8 minutes (SD=3.3, range 18-28 minutes). The programme was 100% acceptable and received full support from both CWE and their parents (100%).
The favourable findings from this study add to the growing evidence suggesting that investment in interactive and animated education programme would be both feasible, well-received by patients and could be a potentially valuable approach to increase access and effectiveness of epilepsy care especially among CWE.
充分了解自身疾病对癫痫患儿（CWE）极为有利。因此，制定一个能激发兴趣并同时提高其认知、知识和态度（AKA）的有效教育项目，对于提升幸福感和健康状况至关重要。
描述一种面向儿童的新型交互式动画癫痫教育项目（IAEEP）的开发过程，并评估其可行性、可接受性和实用性。
IAEEP由神经病学家、儿科医生、药剂师、生物医学科学家和教育工作者组成的跨学科团队基于两个已有的癫痫教育项目开发而成：癫痫患者及其亲属教育项目（MOSES）和癫痫患儿及其父母模块化教育项目（FAMOSES）。来自登嘉楼州三家综合医院儿科的CWE最初被介绍了IAEEP，并被要求填写一份评估表，评估其可行性、可接受性和实用性。采用描述性统计进行数据分析（SPSS 20.0）。
招募了16名CWE（中位年龄=13.0岁；男性=56.2%；马来族=81.2%；中学生=56.2%）及其相应的父母。每名CWE至少拥有一台电脑/笔记本电脑/平板电脑（100%）。IAEEP（以光盘形式）在CWE中分发的成本估计约为每名CWE 17.99马来西亚林吉特/5.90美元。与该项目互动所需的平均时间为22.8分钟（标准差=3.3，范围18 - 28分钟）。该项目的可接受率为100%，并得到了CWE及其父母双方的全力支持（100%）。
本研究的良好结果进一步证明，对交互式动画教育项目的投资是可行的，患者易于接受，并且可能是一种增加癫痫护理可及性和有效性的潜在有价值的方法，特别是在CWE中。
