University of Stirling, UK
Dementia (London). 2014 Jul;13(4):525-43. doi: 10.1177/1471301213479357. Epub 2013 Mar 17.
This paper presents a case study exploring an older woman's perspective on the quality of her life with dementia. The case study establishes the importance of coherence across the life course in understanding how she evaluates her changed situation in the present compared to the past. The metaphoric description of moving from 'up there' to 'down here' represents the perceived struggle to maintain a sense of worth despite a marginalised social position. Being able to define self and social identity in ways that preserve a sense of social status is important to find meaning in everyday life. Finding meaning involves looking backwards to sustain continuity with the past and looking forwards to maintain momentum and keep going. A narrative framework is valuable in showing that quality of life is a dimension of meaning associated with maintaining a sense of social worth.
本论文通过案例研究的方法,探索了一位老年女性对其患有痴呆症后的生活质量的看法。该案例研究强调了在理解她如何将目前的情况与过去进行比较时,贯穿整个生命周期的一致性的重要性。从“高处”到“低处”的比喻性描述代表了她在面对边缘化的社会地位时,努力维持自我价值感的挣扎。能够以保持社会地位感的方式来定义自我和社会身份,对于在日常生活中寻找意义是很重要的。寻找意义涉及到向后看,以保持与过去的连续性,向前看,以保持动力并继续前进。叙述框架在表明生活质量是与维持社会价值感相关的意义维度方面是有价值的。