不断变化的自我：痴呆症对女性个人和社会身份的影响（改善痴呆症体验和增强积极生活计划的研究结果）。
The changing self: The impact of dementia on the personal and social identity of women (findings from the Improving the Experience of Dementia and Enhancing Active Life programme).
机构信息
School of Clinical Medicine, 2152University of Cambridge, England.
出版信息
Dementia (London). 2022 Feb;21(2):503-518. doi: 10.1177/14713012211047351. Epub 2021 Oct 12.
Abstract
This paper explores the impact of dementia on the selfhood of women, specifically the ways in which changes occur as a result of such a diagnosis. Interviews were conducted with 12 women (recruited from the Improving the Experience of Dementia and Enhancing Active Life programme dataset), and analysed using interpretative phenomenological analysis. Emergent themes concerned the process of receiving and adjusting to a dementia diagnosis, the emotional and psychological impact of dementia, self-presentation and stigma and the self-enforcement of new boundaries. The analysis showed that dementia had a wide-ranging impact on the selfhood and identity of women, with newfound characteristics associated with the disease leading to a loss of self-esteem, sadness and anger. The women subsequently engaged in the modification of their behaviour, as a means of coming to terms with the losses experienced.
摘要
本论文探讨了痴呆症对女性自我认同的影响，特别是由于这种诊断而发生的变化方式。对 12 名女性（从改善痴呆症体验和增强活跃生活计划数据集招募）进行了访谈，并使用解释性现象学分析进行了分析。出现的主题涉及接受和适应痴呆症诊断的过程、痴呆症的情绪和心理影响、自我表现和污名以及新边界的自我强化。分析表明，痴呆症对女性的自我认同和身份产生了广泛的影响，与疾病相关的新特征导致自尊心下降、悲伤和愤怒。女性随后改变了自己的行为，以适应所经历的损失。
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