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本文引用的文献

1
Self-esteem, self-efficacy, and optimism as psychological resources among caregivers of people with dementia: findings from the IDEAL study.自尊、自我效能感和乐观主义作为痴呆症患者照料者的心理资源:来自理想研究的发现。
Int Psychogeriatr. 2019 Sep;31(9):1259-1266. doi: 10.1017/S1041610219001236.
2
How medical professional students view older people with dementia: Implications for education and practice.医学专业学生如何看待老年痴呆症患者:对教育和实践的启示。
PLoS One. 2019 Nov 20;14(11):e0225329. doi: 10.1371/journal.pone.0225329. eCollection 2019.
3
Predicting self-esteem in informal caregivers of people with dementia: Modifiable and non-modifiable factors.预测痴呆症患者非专业照护者的自尊:可改变和不可改变因素。
Aging Ment Health. 2020 Feb;24(2):221-226. doi: 10.1080/13607863.2018.1531374. Epub 2018 Dec 31.
4
"I Have Both Lost and Gained." Norwegian Survivors' Experiences of Coping 9 Years After Primary Breast Cancer Surgery.《得失之间:挪威原发性乳腺癌手术后 9 年患者的应对体验》
Cancer Nurs. 2020 Jan/Feb;43(1):E30-E37. doi: 10.1097/NCC.0000000000000656.
5
Stigma, discrimination and agency: Diagnostic disclosure as an everyday practice shaping social citizenship.污名、歧视与能动性:作为塑造社会公民身份日常实践的诊断披露
J Aging Stud. 2018 Mar;44:45-51. doi: 10.1016/j.jaging.2018.01.010. Epub 2018 Feb 9.
6
Influence of hope, social support, and self-esteem in early stage dementia.希望、社会支持和自尊对早期痴呆症的影响。
Dementia (London). 2018 Feb;17(2):214-224. doi: 10.1177/1471301217741744. Epub 2017 Nov 22.
7
A qualitative study on becoming cared for in Alzheimer's disease: the effects to women's sense of identity.一项关于在阿尔茨海默病中被照顾的质性研究:对女性身份认同的影响。
Aging Ment Health. 2017 Oct;21(10):1017-1022. doi: 10.1080/13607863.2016.1200535. Epub 2016 Jun 29.
8
"I Don't Think Of It As An Illness": Illness Representations in Mild to Moderate Dementia.“我不认为这是一种疾病”:轻度至中度痴呆中的疾病认知
J Alzheimers Dis. 2016;51(1):139-50. doi: 10.3233/JAD-150794.
9
Dementia as an existential threat: the importance of self-esteem, social connectedness and meaning in life.痴呆症作为一种生存威胁:自尊、社会联系和生活意义的重要性。
Sci Prog. 2015;98(Pt 4):416-9. doi: 10.3184/003685015X14467423210693.
10
Couples' shared experiences of dementia: a meta-synthesis of the impact upon relationships and couplehood.夫妻对痴呆症的共同经历:对关系和夫妻生活影响的元综合分析
Aging Ment Health. 2016;20(5):463-73. doi: 10.1080/13607863.2015.1023769. Epub 2015 Mar 26.

不断变化的自我:痴呆症对女性个人和社会身份的影响(改善痴呆症体验和增强积极生活计划的研究结果)。

The changing self: The impact of dementia on the personal and social identity of women (findings from the Improving the Experience of Dementia and Enhancing Active Life programme).

机构信息

School of Clinical Medicine, 2152University of Cambridge, England.

出版信息

Dementia (London). 2022 Feb;21(2):503-518. doi: 10.1177/14713012211047351. Epub 2021 Oct 12.

DOI:10.1177/14713012211047351
PMID:34636699
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8811322/
Abstract

This paper explores the impact of dementia on the selfhood of women, specifically the ways in which changes occur as a result of such a diagnosis. Interviews were conducted with 12 women (recruited from the Improving the Experience of Dementia and Enhancing Active Life programme dataset), and analysed using interpretative phenomenological analysis. Emergent themes concerned the process of receiving and adjusting to a dementia diagnosis, the emotional and psychological impact of dementia, self-presentation and stigma and the self-enforcement of new boundaries. The analysis showed that dementia had a wide-ranging impact on the selfhood and identity of women, with newfound characteristics associated with the disease leading to a loss of self-esteem, sadness and anger. The women subsequently engaged in the modification of their behaviour, as a means of coming to terms with the losses experienced.

摘要

本论文探讨了痴呆症对女性自我认同的影响,特别是由于这种诊断而发生的变化方式。对 12 名女性(从改善痴呆症体验和增强活跃生活计划数据集招募)进行了访谈,并使用解释性现象学分析进行了分析。出现的主题涉及接受和适应痴呆症诊断的过程、痴呆症的情绪和心理影响、自我表现和污名以及新边界的自我强化。分析表明,痴呆症对女性的自我认同和身份产生了广泛的影响,与疾病相关的新特征导致自尊心下降、悲伤和愤怒。女性随后改变了自己的行为,以适应所经历的损失。