Kim Sung Reul, Lee Sook Ja
College of Nursing, Chonbuk National University, Jeonju, Korea.
College of Nursing, Korea University, Seoul, Korea.
J Korean Acad Nurs. 2013 Oct;43(5):636-48. doi: 10.4040/jkan.2013.43.5.636.
The purpose of this study was to explore the health-illness transition of patients with Young-Onset Parkinson's Disease (YOPD).
From June to November 2011, 17 patients with YOPD who visited a neurologic clinic in a tertiary hospital participated in the study. Data were collected through in-depth interviews and analyzed using the grounded theory of Strauss and Corbin.
The core category of the participants' health-illness transition emerged as 'reshaping identity following uncontrollable changes'. The participants' health-illness transition process consisted of six phases in sequence: ego withdrawal, loss of role, frustration, change of thought, modification of life tract, and second life. Although most participants proceeded through the six phases chronologically, some returned to the frustration phase and then took up the remaining phases.
The study results provide an in-depth understanding of health-illness transition experiences in the participants. These findings suggest a need to develop appropriate nursing intervention strategies according to the different phases in the health-illness transition of patients with YOPD.
本研究旨在探讨青年型帕金森病(YOPD)患者的健康-疾病转变过程。
2011年6月至11月,17名前往一家三级医院神经科门诊就诊的YOPD患者参与了本研究。通过深入访谈收集数据,并采用施特劳斯和科尔宾的扎根理论进行分析。
参与者健康-疾病转变的核心类别呈现为“在无法控制的变化后重塑身份”。参与者的健康-疾病转变过程依次包括六个阶段:自我退缩、角色丧失、挫折、思维转变、生活轨迹调整和第二次人生。尽管大多数参与者按时间顺序经历了这六个阶段,但一些人会回到挫折阶段,然后继续完成其余阶段。
研究结果深入了解了参与者的健康-疾病转变经历。这些发现表明,需要根据YOPD患者健康-疾病转变的不同阶段制定适当的护理干预策略。