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[德国的癌症流行病学登记处:从法律角度看其历史]

[Epidemiological cancer registries in Germany: history from a legal point of view].

作者信息

Hundsdörfer G

机构信息

-, Raublinger Str. 8, 80686, München, Deutschland,

出版信息

Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2014 Jan;57(1):7-12. doi: 10.1007/s00103-013-1874-3.

DOI:10.1007/s00103-013-1874-3
PMID:24357166
Abstract

Despite decades of efforts, the establishment of a satisfactory nationwide, population-based cancer registry for Germany was very slow. The reason for this until 1990 was the lack of coverage or the-apart from the Saarland-inadequate degree of coverage in the old federal states. The former East Germany, however, had a comprehensive cancer registry. Starting in 1990, decisive obstacles-especially when considering data protection needs and the distribution of powers between federal and state governments-could be overcome. On the basis of an open-ended federal law and state requirements, a nationwide cancer registry with analysis of the collected data for epidemiological purposes has been achieved.

摘要

尽管经过了数十年的努力,但在德国建立一个令人满意的、覆盖全国人口的癌症登记系统的进展非常缓慢。直到1990年,造成这种情况的原因是旧联邦州缺乏覆盖范围,或者(除了萨尔州之外)覆盖程度不足。然而,前东德有一个全面的癌症登记系统。从1990年开始,一些决定性的障碍——尤其是考虑到数据保护需求以及联邦和州政府之间的权力分配——得以克服。基于一项无期限的联邦法律和各州的要求,已经建立了一个全国性的癌症登记系统,并对收集到的数据进行流行病学分析。

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