Can J Gastroenterol Hepatol. 2014 Feb;28(2):89-93. doi: 10.1155/2014/179309.
BACKGROUND/OBJECTIVE: Inflammatory bowel disease (IBD) is a chronic relapsing illness primarily including Crohn disease and ulcerative colitis. The disease course often fluctuates over time, and requires maintenance therapy and acute interventions to target disease flares. IBD management requires a multidisciplinary approach, with care from physicians, nurses, dieticians, social workers and psychologists. Because nurses play a pivotal role in managing chronic disease, the aim of the present study was to assess and determine how many nurses work primarily with IBD patients in Canada.
A 29-question survey was developed using an Internet-based survey tool (www.surveymonkey.com) to investigate nursing demographics, IBD nursing roles and nursing services provided across Canada. Distribution included the Canadian Society of Gastroenterology Nurses and Associates, the Canadian Association of Gastroenterology, Progress (AbbVie Corporation, USA) and BioAdvance (Janssen Inc, USA) coordinators (via e-mail), and online availability for 15 weeks.
Of 275 survey respondents, 98.2% were female nurses, with 68.7% employed in full-time positions. Among them, 42.5% were between 51 and 60 years of age, and 32.4% were between 41 and 50 years of age. In addition, 53.8% were diploma-prepared registered nurses, 35.3% were Baccalaureate-prepared nurses and 4.4% were Masters-prepared nurses. Almost one-half (44% [n=121]) were employed in Ontario, followed by 19.6% (n=54) in Alberta and 9.1% (n=25) in British Columbia. All provinces were represented with the exception of Nunavut and the Northwest Territories. Forty-three per cent (n=119) of nurses identified as working in endoscopy units. Of the 90% who responded as working with IBD patients, only 30% (n=79) had a primary role in IBD care. Among these 79 nurses with a primary role in IBD care, 79.7% worked with the adult population, 10.1% with the pediatric population, and 10.1% worked with both adult and pediatric patients. Their major service was an outpatient setting (67.1%).
Survey results showed that only a small percentage of Canadian gastroenterology nurses provide clinical IBD care. Many have multiple roles and responsibilities, and provide a variety of services. The exact depth of care and service is unclear and further study is needed.
背景/目的：炎症性肠病（IBD）是一种主要包括克罗恩病和溃疡性结肠炎的慢性复发性疾病。该疾病的病程通常随时间波动，需要维持治疗和急性干预以针对疾病发作。IBD 的管理需要多学科的方法，包括医生、护士、营养师、社会工作者和心理学家的护理。由于护士在管理慢性病方面发挥着关键作用，因此本研究的目的是评估并确定加拿大有多少护士主要负责 IBD 患者的护理。
使用基于互联网的调查工具（www.surveymonkey.com）开发了一份 29 个问题的调查问卷，以调查加拿大的护理人口统计学、IBD 护理角色以及提供的护理服务。该问卷通过加拿大胃肠病学护士协会和协会、加拿大胃肠病学协会、Progress（AbbVie Corporation，美国）和 BioAdvance（Janssen Inc，美国）的协调员（通过电子邮件）进行分发，并在线提供了 15 周的时间。
在 275 名接受调查的护士中，98.2%为女性护士，其中 68.7%从事全职工作。其中，42.5%年龄在 51 至 60 岁之间，32.4%年龄在 41 至 50 岁之间。此外，53.8%为大专预备注册护士，35.3%为学士学位预备护士，4.4%为硕士预备护士。近一半（44%[n=121]）在安大略省工作，其次是阿尔伯塔省（19.6%[n=54]）和不列颠哥伦比亚省（9.1%[n=25]）。除努纳武特地区和西北地区外，所有省份均有代表。43%（n=119）的护士表示在内窥镜单位工作。在 90%表示与 IBD 患者合作的护士中，只有 30%（n=79）在 IBD 护理方面发挥主要作用。在这 79 名具有 IBD 护理主要作用的护士中，79.7%为成年人群服务，10.1%为儿科人群服务，10.1%为成年和儿科患者服务。他们的主要服务是门诊（67.1%）。
调查结果表明，只有一小部分加拿大胃肠病学护士提供临床 IBD 护理。许多人具有多种角色和职责，并提供各种服务。确切的护理深度和服务尚不清楚，需要进一步研究。
