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关于遗传性癌症的家庭沟通中的文化差异:对癌症遗传学研究的启示

Cultural differences in family communication about inherited cancer: implications for cancer genetics research.

作者信息

Etchegary Holly, Potter Beth, Perrier Colin, Wilson Brenda

机构信息

Eastern Health, St. John's, NL, Canada.

Faculty of Medicine, University of Ottawa in Ottawa, ON, Canada.

出版信息

J Cult Divers. 2013 Winter;20(4):195-201.

PMID:24575596
Abstract

It is widely accepted that clinical genetic services should provide culturally competent service to clients. However, systematic research is needed on the cultural meanings of heredity, family cancer, and family communication about inherited risk in order to move towards culturally competent cancer genetic services. Cultural differences in how families communicate about inherited risk is a particularly important, but neglected, research focus. The purpose of this paper is to: (1) review extant literature on cultural differences in family communication about inherited cancer risk; and (2) provide suggestions for cancer genetics research that will ultimately help furnish the evidence base for the training and provision of culturally competent cancer genetics services.

摘要

临床遗传服务应向客户提供具有文化胜任力的服务,这一点已得到广泛认可。然而,为了朝着具有文化胜任力的癌症遗传服务迈进,需要对遗传、家族性癌症以及关于遗传风险的家族沟通的文化意义进行系统研究。家族在如何沟通遗传风险方面的文化差异是一个特别重要但被忽视的研究重点。本文的目的是:(1)回顾关于家族沟通遗传癌症风险方面文化差异的现有文献;(2)为癌症遗传学研究提供建议,最终有助于为培训和提供具有文化胜任力的癌症遗传学服务提供证据基础。

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