Devouassoux-Shisheboran Mojgan, Vacher-Lavenu Marie-Cécile
Service de pathologie, hôpital de la Croix Rousse, 103, grande rue de la Croix Rousse, 69317 Lyon 04, France.
Service de pathologie, hôpital Cochin, hôpitaux universitaires Paris Centre, AP-HP, université Paris Descartes, 27, rue du Faubourg-Saint-Jacques, 75679 Paris cedex 14, France.
Ann Pathol. 2014 Feb;34(1):70-3. doi: 10.1016/j.annpat.2014.01.007. Epub 2014 Feb 18.
The observatory of gynecological rare tumors (TMRG) has been initially created for ovarian rare neoplasms (TMRO). Because of the similarities between ovarian and other gynecological tumors, this observatory has been then extended to all gynecological rare tumors. The recognition by INCa of three national expert centers (centre Léon-Bérard, hôpitaux de Paris, institut Gustave-Roussy) in rare gynecological cancers and a network of regional expert centers in 2010, expend the experience of the website "Observatoire francophone des tumeurs rares de l'ovaire". The major goals of this gynecology rare tumors experts network, are to promote systematic second opinion for initial diagnostic by experts in gynecopathology, systematic multidisciplinary advice by surgeons and medical oncologist experts, to disseminate clinical guidelines dedicated to rare gynecological tumors, to promote specific fundamental and translational research within clinical trials dedicated to rare tumors. At the end, we would like to improve benefit in term of survival and/or fertility for all these potential young patients.
妇科罕见肿瘤观察站（TMRG）最初是为卵巢罕见肿瘤（TMRO）设立的。由于卵巢肿瘤与其他妇科肿瘤存在相似性，该观察站随后扩展至所有妇科罕见肿瘤。2010年，法国国家癌症研究所（INCa）认可了三个国家专家中心（里昂贝拉尔中心、巴黎医院、古斯塔夫-鲁西研究所）在妇科罕见癌症方面的工作以及一个区域专家中心网络，这拓展了“法语卵巢罕见肿瘤观察站”网站的经验。这个妇科罕见肿瘤专家网络的主要目标包括：促进妇科病理学专家对初始诊断进行系统的二次诊断意见、外科医生和医学肿瘤学专家提供系统的多学科建议、传播针对妇科罕见肿瘤的临床指南、在针对罕见肿瘤的临床试验中推动特定的基础研究和转化研究。最终，我们希望提高所有这些潜在年轻患者在生存和/或生育方面的获益。
