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需要透析的母亲:育儿与终末期肾病

Mothers requiring dialysis: parenting and end-stage kidney disease.

作者信息

Wadd Kaylene M, Bennett Paul N, Grant Julian

机构信息

Renal Unit, Mackay Base Hospital, Queensland Health, Mackay, Queensland, Australia.

出版信息

J Ren Care. 2014 Jun;40(2):140-6. doi: 10.1111/jorc.12066. Epub 2014 Mar 26.

Abstract

BACKGROUND

Mothers requiring dialysis to treat end-stage kidney disease face the challenging demands of the disease and dialysis treatment in addition to their role as a parent.

OBJECTIVE

To describe the experience of mothers who require haemodialysis.

METHODS

Four mothers receiving haemodialysis treatment for end-stage kidney disease in regional Australia were interviewed to explore the mothers' experiences, attitudes, beliefs and values of their dual role as mothers and haemodialysis recipients.

RESULTS

The overarching theme emerging from the data was the competing roles of motherhood and dialysis. Four key sub-themes emerged: fitting everything in, internal family challenges, lost connections and striving for normality.

CONCLUSION

Being a mother adds a range of complexities to being on dialysis. While managing dialysis, mothers struggle to care for their children and stay connected with family life. Nephrology health professionals are uniquely placed to support mothers and need to develop strategies to ease their burdens of care.

摘要

背景

需要透析治疗终末期肾病的母亲们,除了承担为人父母的角色外,还面临着疾病和透析治疗带来的艰巨挑战。

目的

描述需要血液透析的母亲们的经历。

方法

对澳大利亚地区四名因终末期肾病接受血液透析治疗的母亲进行了访谈,以探讨她们作为母亲和血液透析接受者这一双重角色的经历、态度、信念和价值观。

结果

数据中出现的首要主题是母亲身份与透析的相互竞争的角色。出现了四个关键子主题:兼顾一切、家庭内部挑战、失去联系和努力回归正常。

结论

作为母亲给透析带来了一系列复杂性。在进行透析治疗的同时,母亲们努力照顾孩子并维持与家庭生活的联系。肾脏病健康专业人员处于独特的位置来支持母亲们,需要制定策略来减轻她们的护理负担。

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