Comprehensive Epilepsy Program, University of Florida Health Sciences Center/Jacksonville, Jacksonville, FL, USA.
Comprehensive Epilepsy Program, University of Florida Health Sciences Center/Jacksonville, Jacksonville, FL, USA.
Epilepsy Behav. 2014 Jun;35:42-9. doi: 10.1016/j.yebeh.2014.04.006. Epub 2014 May 3.
Epilepsy is a common neurologic disorder seen throughout the world. Advances in therapy have made it possible for persons with epilepsy (PWEs) to have improved seizure control and a better quality of life. However, it is not entirely clear whether this has resulted in their successful integration into society. This review examines the societal integration of PWEs, identifying both the progress made and the challenges that continue to hamper further advances. In general, PWEs are more integrated in western-oriented cultures. However, there continue to be ongoing difficulties due to poor education and intellectual functioning, poor social and family support, the undertreatment of coexisting psychiatric conditions, transportation and mobility limitations, and problems obtaining employment. This review also discusses the effects of low socioeconomic status on integration and the persisting prejudices that affect certain racial groups. Most importantly, this review underscores the fact that societal stigma towards PWEs is still very much alive. At the beginning of the 21st century, PWEs still encounter difficulties in their quest for full societal integration. Along with medical advances being made to improve seizure control, much still has to be done to bring about the reforms necessary to help PWEs live more meaningful and productive lives.
癫痫是一种在全球范围内常见的神经障碍。治疗方法的进步使癫痫患者（PWEs）有可能更好地控制癫痫发作，提高生活质量。然而，目前尚不完全清楚这是否使他们成功融入社会。本文综述了 PWEs 的社会融合，确定了已经取得的进展和仍然阻碍进一步进展的挑战。一般来说，PWEs 在西方文化中更能融入社会。然而，由于教育和智力功能低下、社会和家庭支持不足、并存的精神疾病治疗不足、交通和行动受限以及就业困难等原因，他们仍然面临持续的困难。本文还讨论了社会经济地位低下对融入社会的影响，以及影响某些种族群体的持续偏见。最重要的是，本文强调了社会对 PWEs 的污名化仍然非常严重。在 21 世纪初，PWEs 在追求全面融入社会的过程中仍然遇到困难。除了在改善癫痫控制方面取得医学进步外，还需要做很多工作来进行必要的改革，帮助 PWEs 过上更有意义和更富有成效的生活。
