Nadpara Pramit A, Madhavan Suresh S
West Virginia University-Pharmaceutical Systems & Policy.
Medicare Medicaid Res Rev. 2012 Nov 5;2(4). doi: 10.5600/mmrr.002.04.a01. eCollection 2012.
Develop the WVCR-Linked dataset by combining the West Virginia Cancer Registry (WVCR) with Medicare, Medicaid, and other data sources. Determine health care utilization, costs, and overall burden of four major cancers among the elderly in a rural and medically underserved state population, and to compare them with national estimates.
We extracted personal identifiers from the West Virginia Cancer Registry (WVCR) data file for individuals ≥ 65 years of age with an incident diagnosis of any cancer between January 1, 2002 and December 31, 2007. We linked the extracted data with Medicare and Medicaid administrative data using deterministic record linkage procedures. We updated missing vital status information by linking the National Death Index (NDI) data file. The updated WVCR-Linked dataset was enriched by links to the U.S. decennial census (2000) file and the Area Resource File.
We identified 42,333 individuals, of which 41,574 (98.2%) and 6,031 (14.3%) individuals were matched with Medicare and Medicaid administrative data files, respectively. The NDI data added or updated vital status information for 3,295 (7.8%) individuals in the WVCR-Linked dataset.
The WVCR-Linked dataset is a comprehensive dataset offering many opportunities to understand factors related to cancer treatment patterns, costs, and outcomes in a rural and medically underserved elderly Appalachian population. Following our example, non-participant states in the Surveillance, Epidemiology and End Results (SEER) program can build a powerful dataset to identify and target cancer disparities, and to improve cancer-related outcomes for their elderly and dual-eligible citizens.
通过将西弗吉尼亚癌症登记处（WVCR）与医疗保险、医疗补助及其他数据源相结合，开发WVCR关联数据集。确定一个农村且医疗服务不足的州人口中老年人四大主要癌症的医疗保健利用率、成本及总体负担，并将其与全国估计值进行比较。
我们从西弗吉尼亚癌症登记处（WVCR）数据文件中提取了2002年1月1日至2007年12月31日期间年龄≥65岁且被确诊患有任何癌症的个人身份识别信息。我们使用确定性记录链接程序将提取的数据与医疗保险和医疗补助管理数据相链接。通过链接国家死亡索引（NDI）数据文件更新缺失的生命状态信息。通过与美国十年一次人口普查（2000年）文件和地区资源文件相链接，丰富了更新后的WVCR关联数据集。
我们识别出42333人，其中分别有41574人（98.2%）和6031人（14.3%）与医疗保险和医疗补助管理数据文件匹配。NDI数据为WVCR关联数据集中的3295人（7.8%）添加或更新了生命状态信息。
WVCR关联数据集是一个综合数据集，为了解农村及医疗服务不足的阿巴拉契亚老年人群体中与癌症治疗模式、成本及结果相关的因素提供了诸多机会。以我们为范例，监测、流行病学与最终结果（SEER）项目中的非参与州可以构建一个强大的数据集，以识别并解决癌症差异问题，并改善其老年及双重资格公民的癌症相关结果。
