Whiting Mark
Peace Children's Centre, Watford.
Nurs Child Young People. 2014 Jun;26(5):26-9. doi: 10.7748/ncyp.26.5.26.e390.
To explore how parents of children with disabilities and complex health needs make sense of the circumstances in which they find themselves.
A series of in-depth semi-structured interviews were undertaken with the parents of 34 children (from 33 families) with a disability or a complex health need. The families were nominated by health professionals to one of three study subgroups: children with a disability, children with a life-limiting or life-threatening illness, or children with technology dependence. Interviews were recorded and transcribed.
Analysis of parents' responses related to sense-making revealed two main categories: 'diagnosis' and 'personal, cultural and personality factors'. These two categories alongside the two other main study themes, 'impact' and 'need for help and support' reported in the previous two articles in this series - linked into a final study theme: 'battleground'.
For the parents of children with complex health needs and disabilities, the sense that they make of their situation plays a pivotal role in determining how parents experience the impact of disability and the need for help and support.
探讨残疾及有复杂健康需求儿童的家长如何理解他们所处的状况。
对34名（来自33个家庭）有残疾或复杂健康需求儿童的家长进行了一系列深入的半结构化访谈。这些家庭由健康专业人员提名至三个研究亚组之一：残疾儿童、患有危及生命或有生命危险疾病的儿童、依赖技术的儿童。访谈进行了录音和转录。
对家长与理解相关的回答进行分析，揭示了两个主要类别：“诊断”和“个人、文化及性格因素”。这两个类别与本系列前两篇文章中报道的另外两个主要研究主题“影响”和“对帮助与支持的需求”——联系成了最终的研究主题：“战场”。
对于有复杂健康需求和残疾儿童的家长而言，他们对自身状况的理解在决定家长如何体验残疾的影响以及对帮助与支持的需求方面起着关键作用。
