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在小型研究中,信息提供者对保密性构成潜在威胁。

Informants a potential threat to confidentiality in small studies.

作者信息

Helgesson Gert

机构信息

Stockholm Centre for Healthcare Ethics (CHE), Department of Learning, Informatics, Management and Ethics (LIME), Karolinska Institutet, 171 77, Stockholm, Sweden,

出版信息

Med Health Care Philos. 2015 Feb;18(1):149-52. doi: 10.1007/s11019-014-9579-4.

DOI:10.1007/s11019-014-9579-4
PMID:24916660
Abstract

Providing proper protection of confidentiality, by preventing personal data from falling into the hands of third parties, is one of the core responsibilities of researchers towards research participants. However, even if researchers do their best in this regard, it does not guarantee that breaches of confidentiality will be avoided. This paper addresses the case of small qualitative studies, arguing that researchers cannot guarantee their informants' confidentiality, since that confidentiality may be compromised by actions taken by the informants themselves. In order to reduce the risk of this specific threat to confidentiality, additional precautions need to be taken. Some potential solutions to the problem are suggested and discussed.

摘要

通过防止个人数据落入第三方手中来提供适当的保密保护,是研究人员对研究参与者的核心责任之一。然而,即使研究人员在这方面尽了最大努力,也不能保证避免保密性的泄露。本文探讨了小型定性研究的情况,认为研究人员无法保证其受访者的保密性,因为这种保密性可能会因受访者自身采取的行动而受到损害。为了降低这种对保密性的特定威胁的风险,需要采取额外的预防措施。文中提出并讨论了该问题的一些潜在解决方案。

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本文引用的文献

1
World Medical Association Declaration of Helsinki: ethical principles for medical research involving human subjects.《世界医学协会赫尔辛基宣言:涉及人类受试者的医学研究伦理原则》
JAMA. 2013 Nov 27;310(20):2191-4. doi: 10.1001/jama.2013.281053.
2
Protecting confidentiality in human research.保护人类研究中的机密性。
Am J Psychiatry. 2013 May;170(5):466-70. doi: 10.1176/appi.ajp.2012.12050595.
3
Protecting Privacy and Confidentiality in Environmental Health Research.在环境卫生研究中保护隐私和机密性。
Ethics Biol Eng Med. 2010;1(4):285-291. doi: 10.1615/EthicsBiologyEngMed.v1.i4.
4
Research ethics. The complexities of genomic identifiability.研究伦理。基因组可识别性的复杂性。
Science. 2013 Jan 18;339(6117):275-6. doi: 10.1126/science.1234593.
5
Participant identification in genetic association studies: improved methods and practical implications.遗传关联研究中的参与者识别:改进方法及实际意义。
Int J Epidemiol. 2011 Dec;40(6):1629-42. doi: 10.1093/ije/dyr149.
6
Caught you: threats to confidentiality due to the public release of large-scale genetic data sets.被你发现了:由于大规模基因数据集的公开发布而对保密性造成的威胁。
BMC Med Ethics. 2010 Dec 29;11:21. doi: 10.1186/1472-6939-11-21.
7
Protecting respondent confidentiality in qualitative research.保护定性研究中被调查者的保密性。
Qual Health Res. 2009 Nov;19(11):1632-41. doi: 10.1177/1049732309350879.
8
Potential harms, anonymization, and the right to withdraw consent to biobank research.生物样本库研究的潜在危害、匿名化以及撤回同意权。
Eur J Hum Genet. 2005 Sep;13(9):1071-6. doi: 10.1038/sj.ejhg.5201458.
9
The focus group method: insights from focus group interviews on sexual health with adolescents.焦点小组方法:关于青少年性健康焦点小组访谈的见解
Soc Sci Med. 2005 Dec;61(12):2588-99. doi: 10.1016/j.socscimed.2005.04.040. Epub 2005 Jun 13.
10
What makes clinical research ethical?临床研究的伦理准则是什么?
JAMA. 2000;283(20):2701-11. doi: 10.1001/jama.283.20.2701.