The national haemophilia program standards, evaluation and oversight systems in the United States of America.
作者信息
Skinner Mark W, Soucie J Michael, Mclaughlin Kathryn
机构信息
National Hemophilia Foundation, Washington, DC, United States of America.
Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, US Department of Health and Human Services, Atlanta, GA, United States of America.
出版信息
Blood Transfus. 2014 Apr;12 Suppl 3(Suppl 3):e542-8. doi: 10.2450/2014.0019-14s.
Abstract
摘要
相似文献
1
The national haemophilia program standards, evaluation and oversight systems in the United States of America.美国的国家血友病项目标准、评估及监督系统。
Blood Transfus. 2014 Apr;12 Suppl 3(Suppl 3):e542-8. doi: 10.2450/2014.0019-14s.
2
Developing models of haemophilia care.开发血友病护理模型。
Haemophilia. 2012 Jul;18 Suppl 4:89-93. doi: 10.1111/j.1365-2516.2012.02876.x.
3
Haemophilia Centre Certification Systems: optional or optimal choice for healthcare systems?血友病中心认证系统：医疗系统的可选还是最佳选择？
Blood Transfus. 2014 Apr;12 Suppl 3(Suppl 3):s492-4. doi: 10.2450/2014.0076-14s.
4
National haemophilia programme development in the Republic of Georgia.格鲁吉亚共和国的国家血友病项目发展
Haemophilia. 2005 Sep;11(5):529-34. doi: 10.1111/j.1365-2516.2005.01127.x.
5
Haemophilia care in South Africa: 2004-2007 look back.南非的血友病护理：回顾2004 - 2007年
Haemophilia. 2009 Jan;15(1):135-41. doi: 10.1111/j.1365-2516.2008.01807.x. Epub 2008 Aug 12.
6
Haemophilia Centre certification system across Europe: the Belgian experience.欧洲血友病中心认证系统：比利时的经验。
Blood Transfus. 2014 Apr;12 Suppl 3(Suppl 3):s497-500. doi: 10.2450/2014.0061-14s.
7
8
The medical view from 34,000 feet.三万四千英尺高空的医学视角。
CMAJ. 2007 Jan 16;176(2):163. doi: 10.1503/cmaj.061599.
9
Some lessons to be learned from Canadian health system.一些可从加拿大医疗系统中学到的经验教训。
Manag Care. 2002 Mar;11(3):38-40.
10
How to achieve a high-performance health care system in the United States.
Ann Intern Med. 2008 May 6;148(9):710-1; author reply 712. doi: 10.7326/0003-4819-148-9-200805060-00018.
引用本文的文献
1
Building the foundation for a community-generated national research blueprint for inherited bleeding disorders: research priorities in health services; diversity, equity, and inclusion; and implementation science.为社区主导的遗传性出血性疾病国家研究蓝图奠定基础：卫生服务中的研究重点；多样性、公平性和包容性；以及实施科学。
Expert Rev Hematol. 2023 Mar;16(sup1):87-106. doi: 10.1080/17474086.2023.2183836.
2
Integrated Hemophilia Patient Care via a National Network of Care Centers in the United States: A Model for Rare Coagulation Disorders.通过美国全国护理中心网络实现血友病患者综合护理：一种罕见凝血障碍的模式。
J Blood Med. 2021 Oct 21;12:897-911. doi: 10.2147/JBM.S325031. eCollection 2021.
3
Haemophilia Centre Certification Systems: optional or optimal choice for healthcare systems?血友病中心认证系统：医疗系统的可选还是最佳选择？
Blood Transfus. 2014 Apr;12 Suppl 3(Suppl 3):s492-4. doi: 10.2450/2014.0076-14s.
本文引用的文献
1
Comparison of clot-based, chromogenic and fluorescence assays for measurement of factor VIII inhibitors in the US Hemophilia Inhibitor Research Study.在美国血友病抑制剂研究中，基于凝血块、显色和荧光测定法比较因子 VIII 抑制剂的测量。
J Thromb Haemost. 2013 Jul;11(7):1300-9. doi: 10.1111/jth.12259.
2
Evidence for the transmission of parvovirus B19 in patients with bleeding disorders treated with plasma-derived factor concentrates in the era of nucleic acid test screening.在核酸检测筛查时代，接受血浆衍生因子浓缩物治疗的出血性疾病患者中，细小病毒 B19 传播的证据。
Transfusion. 2013 Jun;53(6):1217-25. doi: 10.1111/j.1537-2995.2012.03907.x. Epub 2012 Sep 24.
3
Immune tolerance in haemophilia: the long journey to the fork in the road.血友病的免疫耐受：通往分岔口的漫长旅程。
Br J Haematol. 2012 Oct;159(2):123-34. doi: 10.1111/bjh.12028. Epub 2012 Aug 28.
4
Health care expenditures for Medicaid-covered males with haemophilia in the United States, 2008.美国 2008 年医疗补助计划覆盖的血友病男性患者的医疗保健支出。
Haemophilia. 2012 Mar;18(2):276-83. doi: 10.1111/j.1365-2516.2011.02713.x. Epub 2011 Dec 21.
5
Healthcare expenditures for males with haemophilia and employer-sponsored insurance in the United States, 2008.美国 2008 年男性血友病患者与雇主赞助保险的医疗支出。
Haemophilia. 2012 Mar;18(2):268-75. doi: 10.1111/j.1365-2516.2011.02692.x. Epub 2011 Dec 12.
6
A community-based partnership to promote information infrastructure for bleeding disorders.基于社区的合作伙伴关系，以促进出血性疾病的信息基础设施。
Am J Prev Med. 2011 Dec;41(6 Suppl 4):S332-7. doi: 10.1016/j.amepre.2011.09.018.
7
The universal data collection surveillance system for rare bleeding disorders.通用出血性疾病数据收集监测系统。
Am J Prev Med. 2010 Apr;38(4 Suppl):S475-81. doi: 10.1016/j.amepre.2009.12.023.
8
Prophylaxis versus episodic treatment to prevent joint disease in boys with severe hemophilia.预防与间歇性治疗以预防重型血友病男孩的关节疾病
N Engl J Med. 2007 Aug 9;357(6):535-44. doi: 10.1056/NEJMoa067659.
9
Joint range-of-motion limitations among young males with hemophilia: prevalence and risk factors.血友病年轻男性的关节活动范围受限：患病率及危险因素
Blood. 2004 Apr 1;103(7):2467-73. doi: 10.1182/blood-2003-05-1457. Epub 2003 Nov 13.
10
Blood safety monitoring among persons with bleeding disorders--United States, May 1998-June 2002.1998年5月至2002年6月美国出血性疾病患者的血液安全监测
MMWR Morb Mortal Wkly Rep. 2003 Jan 3;51(51-52):1152-4.
Zotero 插件