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共病门诊改善神经肌肉病患者的生活质量:一项随机对照试验。

Shared medical appointments improve QOL in neuromuscular patients: a randomized controlled trial.

机构信息

From the Department of Neurology (F.M.S., G.D., B.G.M.v.E.) and Department for Health Evidence (J.G., G.J.v.d.W.), Radboud University Medical Centre, Nijmegen; and Departments of Neurology and Neurosurgery (G.D.), University Medical Centre Groningen, University of Groningen, the Netherlands.

出版信息

Neurology. 2014 Jul 15;83(3):240-6. doi: 10.1212/WNL.0000000000000588. Epub 2014 Jun 18.

Abstract

OBJECTIVE

To systematically study the effects of shared medical appointments (SMAs) compared with individual appointments for patients with a chronic neuromuscular disorder and their partners.

METHODS

In this randomized controlled trial with a follow-up of 6 months, we included patients with a chronic neuromuscular disorder and their partners. Participants were randomly allocated to an SMA or an individual outpatient appointment. The primary outcome measure was patients' health-related quality of life (QOL) (36-Item Short Form Health Survey). Secondary outcome measures included self-efficacy, social support, patient and partner satisfaction with the appointment, and time available per patient.

RESULTS

Two hundred seventy-two patients and 149 partners were included. Health-related QOL showed greater improvement in patients who had attended an SMA (mean difference 2.8 points, 95% confidence interval 0.0-5.7, p = 0.05). Secondary outcomes showed small improvements in the control group for satisfaction with the appointment (p = 0.01). Neurologists spent less time per patient during the SMAs: mean 16 minutes (range 11-30) vs. 25 minutes (range 20-30) for individual appointments.

CONCLUSIONS

This study provides evidence that SMAs can improve aspects of QOL of patients with a chronic neuromuscular disorder. This could result in an alternative to individual appointments and improvements in both effectiveness and efficiency. Further research to optimize SMAs and to identify critical success factors seems warranted. These data extend evidence on SMAs for neurologic patients.

CLASSIFICATION OF EVIDENCE

This study provides Class III evidence that for patients with chronic neuromuscular disorders, SMAs improve QOL as compared with individual medical appointments.

摘要

目的

系统研究共同就诊(SMAs)与针对慢性神经肌肉疾病患者及其伴侣的个体就诊相比的效果。

方法

在这项为期 6 个月随访的随机对照试验中,我们纳入了患有慢性神经肌肉疾病的患者及其伴侣。参与者被随机分配到 SMA 或个体门诊就诊。主要结局测量指标是患者的健康相关生活质量(QOL)(36 项简短健康调查问卷)。次要结局指标包括自我效能、社会支持、患者和伴侣对就诊的满意度以及每位患者的可用时间。

结果

共纳入 272 名患者和 149 名伴侣。接受 SMA 就诊的患者的健康相关 QOL 有更大的改善(平均差异 2.8 分,95%置信区间 0.0-5.7,p = 0.05)。对照组对就诊满意度也有较小的改善(p = 0.01)。神经科医生在 SMA 期间为每位患者花费的时间更少:平均 16 分钟(范围 11-30),而个体就诊时为 25 分钟(范围 20-30)。

结论

这项研究提供了证据表明 SMA 可以改善慢性神经肌肉疾病患者的 QOL 方面。这可能会替代个体就诊,并提高效果和效率。进一步研究优化 SMA 并确定关键成功因素似乎是必要的。这些数据扩展了 SMA 在神经科患者中的证据。

证据分类

这项研究提供了 III 级证据,表明对于患有慢性神经肌肉疾病的患者,与个体医疗预约相比,SMAs 可改善 QOL。

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