Rowlands Ingrid J, Lee Christina, Beesley Vanessa L, Janda Monika, Nagle Christina M, Webb Penelope M
Author Affiliations: Queensland Institute of Medical Research, Gynaecological Cancers Group (Drs Rowlands, Beesley, Nagle, and Webb); School of Psychology, University of Queensland (Dr Lee); and School of Public Health, Queensland University of Technology, Brisbane, Australia (Dr Janda).
Cancer Nurs. 2015 Jan-Feb;38(1):E21-8. doi: 10.1097/NCC.0000000000000129.
Few studies have examined the long-term changes experienced by women treated for endometrial cancer.
The objectives of this study were to describe what women perceived important to their lifestyle and quality of life in the years following their diagnosis and to provide new insights that might inform healthcare practice.
This was a thematic analysis of 237 open-ended comments from Australian women diagnosed with endometrial cancer 3 to 5 years previously.
We identified 3 main themes: (1) personal change, in which women spoke about cancer as permanently altering their lives in mostly negative but sometimes positive ways; (2) continuity of former life, which described both the minimal impact of cancer on women's lives and identities and the difficulties negotiating this within the dominant "cancer survivorship" culture; (3) social support, where women wrote about how the quality of their relationships shaped their cancer trajectory.
While typical "survivorship" issues exist for many women with endometrial cancer (eg, physical, emotional, sexual health changes), a proportion of women will not be focused on their cancer and can be encouraged to form lives and identities that are not situated within the "cancer survivorship" culture.
A network of support, sensitive to women's responses to having cancer, may benefit women's long-term adjustment. Regular standardized assessment of women's needs may facilitate appropriate support for those with concerns, whereas those without concerns could be reassured by health professionals that their experience is normal and shared by other people with cancer. This may encourage women to form lives that are personally meaningful.
很少有研究探讨接受子宫内膜癌治疗的女性所经历的长期变化。
本研究的目的是描述女性在确诊后的几年里认为对其生活方式和生活质量重要的因素，并提供可能为医疗实践提供参考的新见解。
这是一项对237条开放式评论的主题分析，这些评论来自3至5年前被诊断为子宫内膜癌的澳大利亚女性。
我们确定了3个主要主题：（1）个人变化，女性谈到癌症以大多负面但有时也有正面的方式永久性地改变了她们的生活；（2）以前生活的延续性，描述了癌症对女性生活和身份的影响极小，以及在占主导地位的“癌症幸存者”文化中协调这一点的困难；（3）社会支持，女性写下她们人际关系的质量如何塑造了她们的癌症历程。
虽然许多子宫内膜癌女性存在典型的“幸存者”问题（如身体、情感、性健康方面的变化），但一部分女性不会专注于她们的癌症，可以鼓励她们形成不局限于“癌症幸存者”文化的生活和身份认同。
一个对女性患癌反应敏感的支持网络可能有利于女性的长期调整。定期对女性需求进行标准化评估可能有助于为有担忧的女性提供适当支持，而对于没有担忧的女性，医疗专业人员可以让她们放心，她们的经历是正常的，其他癌症患者也有同样的经历。这可能会鼓励女性形成有个人意义的生活。
