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家庭成员关于脑死亡亲属器官捐献的经历。

Experiences of the families concerning organ donation of a family member with brain death.

作者信息

Yousefi Hojatollah, Roshani Asieh, Nazari Fatemeh

机构信息

Assistant Professor, Department of Adult Nursing, School of nursing and midwifery Nursing and Midwifery Care Research Center, Isfahan University of Medical Sciences, Isfahan, Iran.

Eisabne-Maryam Hospital, Isfahan, Iran.

出版信息

Iran J Nurs Midwifery Res. 2014 May;19(3):323-30.

PMID:24949074
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4061636/
Abstract

BACKGROUND

In recent years, the lack of organ for transplantation has resulted in health planners and authorities in all countries, including Iran, paying serious attention to the issue. Despite the above-mentioned fact, families with a member affected by brain death are not interested in organ donation.

OBJECTIVE

This study is aimed at making an investigation into the decision-making process of organ donation in families with brain death. Also, the research is aimed at investigating how the deterrent and facilitating factors in the process of organ donation can be made.

MATERIALS AND METHODS

The current research is a qualitative study with descriptive exploratory approach. Data were collected through unstructured interviews with 10 family members who gave consent to organ donation of their family members in 2012. Purposeful sampling processes began in March 2012 and lasted up to June 2012. Simultaneously, thematic approach was used in analyzing the data.

RESULTS

Data analysis led to finding 24 categories and 11 themes, which fell into two categories: facilitating and deterrent factors. The five main deterrent themes included the five themes of prohibiting factors that were shock, hope for recovery, unknown process, and conflict of opinions, and worrying association. The six main facilitating themes included humanistic desires, immortality, culture making, satisfaction of the deceased, assurance, and eternal honor.

CONCLUSION

The findings indicated that there is ambiguity and different interpretations on brain death. The research also showed that using the experiences of donator families can provide practical and applied solutions to facilitate the process of organ donation and solve the problems faced by the health care system.

摘要

背景

近年来,包括伊朗在内的所有国家的卫生规划者和当局都因移植器官短缺而高度重视这一问题。尽管如此,家庭成员中有脑死亡患者的家庭对器官捐赠并不感兴趣。

目的

本研究旨在调查脑死亡患者家庭的器官捐赠决策过程。此外,该研究还旨在探讨如何确定器官捐赠过程中的阻碍因素和促进因素。

材料与方法

本研究是一项采用描述性探索性方法的定性研究。通过对2012年同意其家庭成员器官捐赠的10名家庭成员进行非结构化访谈收集数据。目的抽样过程于2012年3月开始,持续到2012年6月。同时,采用主题分析法对数据进行分析。

结果

数据分析得出24个类别和11个主题,分为两类:促进因素和阻碍因素。五个主要阻碍主题包括五个禁止因素主题,即震惊、康复希望、过程不明、意见冲突和令人担忧的关联。六个主要促进主题包括人文愿望、不朽、文化塑造、逝者满意度、保证和永恒荣誉。

结论

研究结果表明,对脑死亡存在模糊性和不同解释。研究还表明,利用捐赠者家庭的经验可以提供切实可行的解决方案,以促进器官捐赠过程,并解决医疗保健系统面临的问题。

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本文引用的文献

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Exploring the needs and perceptions of Iranian families faced with brain death news and request to donate organ: a qualitative study.探索面临脑死亡消息并被请求捐赠器官的伊朗家庭的需求和看法:一项定性研究。
Int J Organ Transplant Med. 2012;3(2):92-100.
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Organ donation experiences of family members.家庭成员的器官捐赠经历。
Nephrol Nurs J. 2010 May-Jun;37(3):229-36; quiz 237.
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Organ donation procedures: an epidemiological study.器官捐赠程序:一项流行病学研究。
Prog Transplant. 2010 Mar;20(1):88-95. doi: 10.1177/152692481002000114.
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Family, friends, and faith: how organ donor families heal.家人、朋友与信念:器官捐赠者的家属如何走出伤痛
Prog Transplant. 2009 Dec;19(4):358-61. doi: 10.1177/152692480901900412.
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What does a diagnosis of brain death mean to family members approached about organ donation? A review of the literature.对于被询问器官捐献事宜的家庭成员而言,脑死亡诊断意味着什么?文献综述。
Prog Transplant. 2008 Jun;18(2):118-25; quiz 126. doi: 10.1177/152692480801800209.
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Family, patients, and organ and tissue donation: who decides?家庭、患者与器官及组织捐赠:谁来做决定?
Transplant Proc. 2008 May;40(4):1037-40. doi: 10.1016/j.transproceed.2008.03.050.
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The experiences of Chinese family members of terminally ill patients - a qualitative study.晚期绝症患者中国家庭成员的经历——一项定性研究
J Clin Nurs. 2007 Dec;16(12):2357-64. doi: 10.1111/j.1365-2702.2007.01943.x.
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Do people accept brain death as death? A study in Brazil.人们是否接受脑死亡即死亡?一项在巴西开展的研究。
Prog Transplant. 2007 Mar;17(1):63-7. doi: 10.1177/152692480701700110.
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Deceased organ donation in Brazil: how can we improve?巴西的 deceased 器官捐赠:我们如何改进? (注:“deceased”常见释义为“已故的” ,在这里结合语境推测可能是指“脑死亡判定后进行器官捐献”这种相关概念,但由于原文表述不够明确,翻译可能存在一定局限性 )
Transplant Proc. 2007 Mar;39(2):401-2. doi: 10.1016/j.transproceed.2007.01.030.
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Family experiences of tissue donation in Australia.澳大利亚组织捐赠的家庭经历。
Prog Transplant. 2006 Mar;16(1):52-6. doi: 10.1177/152692480601600111.