Li Qiuping, Chiang Vico Chung Lim, Xu Xifeng, Xu Yinghua, Loke Alice Yuen
Author Affiliations: Wuxi Medical School, Jiangnan University, Wuxi, Jiangsu Province (Ms Li); School of Nursing, The Hong Kong Polytechnic University, Hung Hom, Kowloon Hong Kong (Dr Chiang and Prof Loke); and Wuxi People's Hospital, Wuxi, Jiangsu Province (Mss X. Xu and Y. Xu), China.
Cancer Nurs. 2015 Sep-Oct;38(5):383-94. doi: 10.1097/NCC.0000000000000196.
With the research focus on family caregiving shifting from the individual to the dyadic level, there is a need to explore cancer dyads' concerns and needs and to understand their experiences of coping together with cancer.
To objectives of this study were to gain a better understanding of the experience of couples living with cancer and to explore cancer couples' concerns and needs related to the caring role and experience of spousal caregivers.
The focus group study design with a purposeful sampling strategy was adopted. We conducted 4 focus group interviews with 11 cancer patients and 17 spousal caregivers in a hospital.
Four themes and 15 subthemes emerged after a conventional content analysis. The 4 themes include communication dynamics, living with changes, negative and positive impacts, and network of support. Based on the findings, we drew a preliminary conceptualization of the couples' experience of coping and living with cancer as a whole.
This study provided insights to healthcare professionals regarding daily struggles of couples living with cancer and the development of intervention programs to support these couples.
Healthcare professionals need to (1) be sensitive to the couples' needs and concerns, (2) offer sufficient and useful information to couples who are coping with cancer, (3) encourage and help spousal caregivers to take care of themselves while coping with the changes in their spouses, and (4) instill realistic hopes in couples and help them to sustain a positive attitude with a focus on the future, not just on the present.
随着对家庭照护的研究重点从个体层面转向二元层面，有必要探索癌症患者二元组的担忧和需求，并了解他们共同应对癌症的经历。
本研究的目的是更好地了解患癌夫妇的经历，并探索癌症夫妇在照护角色及配偶照护者经历方面的担忧和需求。
采用有目的抽样策略的焦点小组研究设计。我们在一家医院对11名癌症患者和17名配偶照护者进行了4次焦点小组访谈。
经过传统内容分析后出现了4个主题和15个子主题。这4个主题包括沟通动态、随变化生活、消极和积极影响以及支持网络。基于这些发现，我们初步构建了夫妇应对和共同面对癌症经历的概念化整体框架。
本研究为医疗保健专业人员提供了有关患癌夫妇日常困境的见解以及支持这些夫妇的干预项目的发展方向。
医疗保健专业人员需要（1）对夫妇的需求和担忧保持敏感，（2）向应对癌症的夫妇提供充分且有用的信息，（3）鼓励并帮助配偶照护者在应对配偶变化的同时照顾好自己，（4）向夫妇灌输现实的希望，帮助他们保持积极的态度，关注未来而非仅仅着眼于当下。
