Brighi Raffaella, Virone Maria Gabriella
C.I.R.S.F.I.D., Faculty of Law - University of Bologna, Italy.
Stud Health Technol Inform. 2014;205:965-9.
Digitalized information in health sector can improve primary care quality and facilitate public health researches to benefit society. The state of the art encourages the development of ICT solutions for a greater usability of de-identified health data. Several governments are implementing effective strategies such as Open Government Data and Linked Open Data in order to access public data and promote new economic activities. Legal and technical analyses emphasize the urgent need for a deeper focus on harmonization such that health data can actually empower patient and scientific research. The mentioned goal is possible if three conditions are achieved: harmonization of law, harmonization of legal and technical rules and harmonization of Electronic Health Record system design.
卫生部门的数字化信息可以提高初级保健质量,并促进公共卫生研究以造福社会。最新技术鼓励开发信息通信技术解决方案,以提高去识别化健康数据的可用性。一些政府正在实施有效战略,如开放政府数据和关联开放数据,以便获取公共数据并促进新的经济活动。法律和技术分析强调迫切需要更深入地关注协调统一,以便健康数据能够真正赋能患者和科学研究。如果实现三个条件,上述目标是可以实现的:法律协调统一、法律和技术规则协调统一以及电子健康记录系统设计协调统一。