Kim S S, Mancuso C A, Huang W-T, Erkan D
Department of Rheumatology, Lehigh Valley Health Network, USA
Department of Rheumatology, Hospital for Special Surgery, USA.
Lupus. 2015 Feb;24(2):122-9. doi: 10.1177/0961203314550224. Epub 2014 Sep 8.
The objective of this paper is to introduce the concept of social capital as a unique and distinct entity from the traditional psychosocial factors of social support, depressive symptoms, and self-efficacy in systemic lupus erythematosus (SLE) patients, and to evaluate how social capital varies in an SLE sample according to demographic, clinical, and psychosocial variables.
In a cross-sectional study, SLE patients completed the Adapted Social Capital Assessment Tool (A-SCAT), which measures cognitive and structural social capital. Patients also completed measures of social support, depressive symptoms, and SLE self-efficacy. Correlations were evaluated between social capital scores and demographic, clinical, and psychosocial variables.
We recruited 89 patients (mean age: 39 ± 15 years old, 83 (93): female; mean SLEDAI: 4; mean SLICC 1). The mean A-SCAT score was 34 ± 15 (normal: 0-71); higher scores were associated with female sex, older age, higher education, Caucasian race, and non-Medicaid insurance (p ≤ 0.03 for all); associations were attributable to structural social capital. Social capital was not associated with depressive symptoms, self-efficacy, or affectionate and interaction social support, but was associated with informational and tangible social support (r = 0.39, r = 0.26, respectively, p ≤ 0.02). There were no associations between SLEDAI and SLICC and social capital, social support, and depressive symptoms.
Social capital is a novel construct that, like other traditional psychosocial measures, addresses aspects of SLE not reflected by markers of disease activity. Social capital, however, is distinct from traditional psychosocial measures and offers a new platform on which ideas of social connectedness can broaden our understanding of health and chronic illness.
本文旨在介绍社会资本这一概念，它是系统性红斑狼疮（SLE）患者中一种有别于社会支持、抑郁症状和自我效能等传统心理社会因素的独特实体，并评估社会资本在SLE样本中如何根据人口统计学、临床和心理社会变量而变化。
在一项横断面研究中，SLE患者完成了改编后的社会资本评估工具（A-SCAT），该工具用于测量认知和结构社会资本。患者还完成了社会支持、抑郁症状和SLE自我效能的测量。评估了社会资本得分与人口统计学、临床和心理社会变量之间的相关性。
我们招募了89名患者（平均年龄：39±15岁，83名（93%）为女性；平均SLEDAI：4；平均SLICC 1）。A-SCAT平均得分为34±15（正常范围：0-71）；较高得分与女性、年龄较大、教育程度较高、白种人种族和非医疗补助保险相关（所有p≤0.03）；这些关联归因于结构社会资本。社会资本与抑郁症状、自我效能或情感及互动社会支持无关，但与信息性和实质性社会支持相关（分别为r = 0.39，r = 0.26，p≤0.02）。SLEDAI和SLICC与社会资本、社会支持和抑郁症状之间无关联。
社会资本是一种新的概念，与其他传统心理社会测量方法一样，涉及疾病活动标志物未反映的SLE方面。然而，社会资本有别于传统心理社会测量方法，并提供了一个新平台，在此平台上，社会联系的理念可以拓宽我们对健康和慢性病的理解。
