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在神经康复中心作为住院患者,受伤后0至2年,身为一名患有后天性脑损伤(ABI)的家长的经历。

The experience of being a parent with an acquired brain injury (ABI) as an inpatient at a neuro-rehabilitation centre, 0-2 years post-injury.

作者信息

Edwards Adrian Richard, Daisley Audrey, Newby Gavin

机构信息

Paediatric Psychology Department, Oxford Children's Hospital , Headington, Oxford , UK .

出版信息

Brain Inj. 2014;28(13-14):1700-10. doi: 10.3109/02699052.2014.947633. Epub 2014 Sep 10.

Abstract

PRIMARY OBJECTIVE

Little research has been conducted exploring the issues surrounding parenting with an acquired brain injury (ABI). This study aimed to explore the experiences and needs of parents who suffered an ABI in the last 2 years from their own perspectives. For individuals with an ABI who have dependent children their ABI has the potential to impact upon their parenting abilities, skills and relationships.

RESEARCH DESIGN

Interpretive phenomenological analysis (IPA) was used to analyse the data. Using IPA allowed the research questions and inquiry to be positioned epistemologically and directed towards 'meaning' rather than 'difference' or 'causality'.

METHODS

Five participants (two female, three male) were interviewed using a semi-structured interview schedule.

MAIN OUTCOMES

Four main themes were identified: (i) Multiple losses, (ii) A mix of resigned acceptance and uncertain future, (iii) Giving and receiving support is part of the healing process and (iv) Hopes and aspirations.

CONCLUSIONS

The results indicated that the participants experienced an oscillation between experiencing the multiple losses of their parental role and attempting to adapt and adjust to these changes. These findings are discussed in relation to clinical and theoretical implications for parents who are inpatients with an ABI up to 2 years post-injury.

摘要

主要目标

关于后天性脑损伤(ABI)患者为人父母相关问题的研究较少。本研究旨在从自身角度探索过去两年内遭受ABI的父母的经历和需求。对于有未成年子女的ABI患者而言,其损伤有可能影响他们的养育能力、技巧及亲子关系。

研究设计

采用诠释现象学分析(IPA)方法分析数据。运用IPA能使研究问题和探究在认识论层面得以定位,并指向“意义”而非“差异”或“因果关系”。

方法

采用半结构化访谈提纲对五名参与者(两名女性,三名男性)进行访谈。

主要结果

确定了四个主要主题:(i)多重损失;(ii)既听天由命又对未来感到迷茫;(iii)给予和接受支持是康复过程的一部分;(iv)希望和抱负。

结论

结果表明,参与者在经历父母角色的多重损失与试图适应这些变化之间摇摆不定。结合这些发现,探讨了其对受伤后两年内住院治疗的ABI患者父母的临床和理论意义。

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