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“有哪些服务?”:神经障碍患儿父母感知到的未满足支持需求。

"What Services?": Stakeholders' Perceived Unmet Support Needs for Parents With Neurological Disorders.

出版信息

Can J Occup Ther. 2024 Jun;91(2):160-171. doi: 10.1177/00084174231190765. Epub 2023 Aug 9.

Abstract

Knowledge about the needs of parents with neurological disorders who take care of young children is limited. The overall aim of this qualitative study was to explore the perceived unmet parent needs, current supports, and potential solutions to optimize supports of parents with neurological disorders in early childhood in a Canadian setting. Focus groups and individual interviews with parents (  =  8), spouses (  =  5), rehabilitation clinicians (  =  8), community partners (  =  7), and researchers (  =  7) were conducted with a total of 35 participants recruited using convenience sampling. Inductive iterative thematic analysis was performed. The participants identified the need for society to officially recognize parenting with disabilities, adjust public policies, increase the scope of public programs, consider child development and family well-being, and have barrier-free communities. Providing customized solutions that will adequately fill perceived service gaps is of utmost importance to address these families' needs.

摘要

关于照顾幼儿的神经障碍父母的需求的知识有限。本定性研究的总体目的是探索在加拿大环境中,神经障碍父母的未满足的父母需求、当前支持以及优化支持的潜在解决方案。通过方便抽样,共招募了 35 名参与者,对父母(8 名)、配偶(5 名)、康复临床医生(8 名)、社区合作伙伴(7 名)和研究人员(7 名)进行了焦点小组和个人访谈。采用归纳迭代主题分析。参与者确定了社会正式承认残疾父母育儿的必要性,调整公共政策,扩大公共计划的范围,考虑儿童发展和家庭福祉,以及建设无障碍社区。提供将充分满足服务缺口的定制解决方案对于满足这些家庭的需求至关重要。

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