印度耻辱感与生活质量之间的反比关系：癫痫是一种致残性神经疾病吗？
Inverse relationship between stigma and quality of life in India: is epilepsy a disabling neurological condition?
作者信息
Nehra Ashima, Singla Sweta, Bajpai Swati, Malviya Shrividhya, Padma Vasantha, Tripathi Manjari
机构信息
Department of Clinical Neuropsychology, All India Institute of Medical Sciences, New Delhi, India.
Department of Neurology, All India Institute of Medical Sciences, New Delhi, India.
出版信息
Epilepsy Behav. 2014 Oct;39:116-25. doi: 10.1016/j.yebeh.2014.07.004. Epub 2014 Sep 18.
OBJECTIVE
Stigma associated with epilepsy has negative effects on psychosocial outcomes, affecting quality of life (QOL) and increasing disease burden in persons with epilepsy (PWEs). The aim of our study was to measure the impact of stigma on the QOL of PWEs and the prevalence of neurological disability due to stigmatized epilepsy.
METHOD
A prospective observational study with a sample of 208 PWEs was conducted. Neuropsychological Tests used were the Indian Disability Evaluation Assessment Scale (IDEAS) to measure disability, the Dysfunctional Analysis Questionnaire (DAQ) to measure QOL, and the Stigma Scale for Epilepsy (SSE) to assess stigma.
RESULTS
Spearman correlation was calculated, and stigma (SSE) was highly significant with QOL (DAQ) (0.019) and disability due to stigmatized epilepsy (IDEAS) (0.011).
CONCLUSION
The present study supports the global perception of stigma associated with epilepsy and its negative impact on their overall QOL and its contribution to the escalation of the disease burden.
目的
与癫痫相关的污名对心理社会结局有负面影响，影响癫痫患者（PWE）的生活质量（QOL）并增加其疾病负担。我们研究的目的是衡量污名对癫痫患者生活质量的影响以及因污名化癫痫导致的神经功能障碍患病率。
方法
对208名癫痫患者进行了一项前瞻性观察研究。使用的神经心理学测试包括用于测量残疾的印度残疾评估评定量表（IDEAS）、用于测量生活质量的功能失调分析问卷（DAQ）以及用于评估污名的癫痫污名量表（SSE）。
结果
计算了斯皮尔曼相关性，污名（SSE）与生活质量（DAQ）（0.019）以及因污名化癫痫导致的残疾（IDEAS）（0.011）高度相关。
结论
本研究支持了与癫痫相关污名的全球认知及其对癫痫患者总体生活质量的负面影响，以及其对疾病负担加重的作用。
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