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印度的癫痫症II:影响、负担以及多部门公共卫生应对的必要性。

Epilepsy in India II: Impact, burden, and need for a multisectoral public health response.

作者信息

Amudhan Senthil, Gururaj Gopalkrishna, Satishchandra Parthasarathy

机构信息

Department of Epidemiology, Centre for Public Health, Bangalore, Karnataka, India.

Director/Vice-chancellor and Professor of Neurology, National Institute of Mental Health and Neurosciences, Bangalore, Karnataka, India.

出版信息

Ann Indian Acad Neurol. 2015 Oct-Dec;18(4):369-81. doi: 10.4103/0972-2327.165483.

Abstract

Epilepsy is a common neurological disorder whose consequences are influenced socially and culturally, especially in India. This review (second of the two part series) was carried out to understand the social impact and economic burden to develop comprehensive program for control and prevention of epilepsy. Epilepsy is known to have adverse effect on education, employment, marriage, and other essential social opportunities. Economic burden associated with epilepsy is very high with treatment and travel costs emerging as an important contributing factor. A vicious cycle between economic burden and poor disease outcome is clear. There is no significant change in the perception, stigma, and discrimination of epilepsy across the country despite improvement in educational and social parameters over the time. The huge treatment gap and poor quality of life is further worsened by the associated comorbidities and conditions. Thus, a multidisciplinary response is needed to address the burden and impact of epilepsy which calls for an integrated and multipronged approach for epilepsy care, prevention, and rehabilitation. Service delivery, capacity building, integration into the existing program, mobilizing public support, and increasing public awareness will be the hallmarks of such an integrated approach in a public health model.

摘要

癫痫是一种常见的神经系统疾病,其后果受到社会和文化的影响,在印度尤其如此。本综述(两部分系列的第二篇)旨在了解其社会影响和经济负担,以便制定全面的癫痫控制和预防计划。众所周知,癫痫对教育、就业、婚姻及其他重要社会机会均有不利影响。与癫痫相关的经济负担非常高,治疗和交通费用是一个重要的促成因素。经济负担与不良疾病结局之间的恶性循环显而易见。尽管随着时间的推移,教育和社会指标有所改善,但全国对癫痫的认知、耻辱感和歧视并未有显著变化。相关的合并症和病症进一步加剧了巨大的治疗差距和低下的生活质量。因此,需要采取多学科应对措施来解决癫痫的负担和影响,这就要求在癫痫护理、预防和康复方面采取综合、多管齐下的方法。服务提供、能力建设、融入现有计划、动员公众支持以及提高公众意识将是公共卫生模式下这种综合方法的标志。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/df08/4683872/2a18e7041787/AIAN-18-369-g001.jpg

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