Centre for Functioning and Health Research, Metro South Health District, Brisbane, Australia Centre for Community Science, School of Human Services, Griffith University, Brisbane, Australia.
School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Australia.
NeuroRehabilitation. 2014;35(3):475-80. doi: 10.3233/NRE-141139.
Family member engagement is increasingly recognised as an influential factor in the rehabilitation continuum following Acquired Brain Injury, including the inpatient setting and longer-term community integration phases.
To explore the experiences of patients and family members about their involvement in brain injury rehabilitation.
This study comprised individual and group interviews with 14 ex-patients and family members. Interviews explored effects of inpatient rehabilitation on family relationships. Interview audio recordings were analysed using an interpretive approach by two independent researchers.
Findings clearly confirmed the significance of engaging family members in inpatient rehabilitation, and specifically reinforced the importance of informational, emotional, practical and peer support. However, the key finding of the study was the importance of hope, and the need for rehabilitation professionals to foster hope. Despite not having included any questions on this topic, all interviewees noted the importance of hope, some saw it as fundamental to positive outcomes, and many were unconvinced of rehabilitation professionals' concern to avoid false hope. Various dimensions of hope are explored.
The study notes that hope has been identified as highly important in many areas beyond brain injury rehabilitation. Based on this small preliminary study, the issue of hope is seen as a key focus for future research.
家庭成员的参与在脑损伤康复的连续体中越来越被认为是一个有影响力的因素，包括住院治疗和长期的社区融合阶段。
探讨患者和家庭成员对他们参与脑损伤康复的体验。
本研究包括对 14 名前患者和家属进行个体和小组访谈。访谈探讨了住院康复对家庭关系的影响。访谈的音频记录由两名独立的研究人员使用解释性方法进行分析。
研究结果清楚地证实了让家庭成员参与住院康复的重要性，特别是加强了信息、情感、实际和同伴支持的重要性。然而，这项研究的主要发现是希望的重要性，以及康复专业人员培养希望的必要性。尽管研究中没有包括任何关于这个主题的问题，但所有的受访者都注意到了希望的重要性，一些人认为希望是积极结果的基础，许多人对康复专业人员避免虚假希望的关注表示怀疑。希望的各个维度都进行了探讨。
本研究指出，希望在脑损伤康复以外的许多领域都被认为是非常重要的。基于这项初步的小规模研究，希望问题被视为未来研究的一个关键焦点。
