Mukherjee R, Wray E, Hollins S, Curfs L
Specialist FASD Behavioural Clinic, Surrey and Borders Partnership NHS Foundation Trust, Surrey, UK.
Child Care Health Dev. 2015 May;41(3):467-74. doi: 10.1111/cch.12187. Epub 2014 Sep 24.
Foetal alcohol spectrum disorders (FASD) are a set of preventable conditions where the foetus is exposed to alcohol in utero and as a result suffers adverse consequences. To develop a public health strategy related to FASD, it is important to first establish what is known by the public about this condition. This study aimed to assess the current level of knowledge about FASD in the UK general population.
A mixed methodology study was conducted using a 17-item questionnaire and focus group sessions. Four focus groups were held with an average of 10 people in each group. Semi-structured questions and thematic analysis of interviews alongside quantitative analysis of the questionnaire data was completed. The research was approved by an National Health service (NHS) research ethical committee.
A total of 674 people responded to the questionnaire and a majority (86.7%) had heard about FASD, with most receiving their information from the media (26.2%) or from their work (27.7%). Four broad themes emerged. Overall these were: a general lack of knowledge about the subject; information about the subject needed to be personally relevant; there was a need for further education; and there was a lack of clarity in the current guidance on alcohol use in pregnancy.
Currently there appears to be a superficial level of knowledge about FASD in the UK general public. More detailed work in subgroups, such as young women, to identify their specific needs may be necessary before targeted public health and educational interventions can be developed to meet the needs of the general public.
胎儿酒精谱系障碍(FASD)是一组可预防的病症,胎儿在子宫内接触酒精,从而遭受不良后果。要制定与FASD相关的公共卫生策略,首先了解公众对这种病症的认识情况非常重要。本研究旨在评估英国普通人群对FASD的当前认知水平。
采用一项包含17个项目的问卷调查和焦点小组会议进行混合方法研究。举行了4个焦点小组,每组平均有10人。完成了半结构化问题和访谈的主题分析以及问卷数据的定量分析。该研究获得了国民健康服务(NHS)研究伦理委员会的批准。
共有674人回复了问卷,大多数人(86.7%)听说过FASD,其中大多数人从媒体(26.2%)或工作中(27.7%)获取信息。出现了四个广泛的主题。总体而言,这些主题是:对该主题普遍缺乏了解;关于该主题的信息需要与个人相关;需要进一步教育;以及目前关于孕期饮酒的指导不够清晰。
目前英国普通公众对FASD的了解似乎处于表面水平。在制定有针对性的公共卫生和教育干预措施以满足普通公众的需求之前,可能需要在年轻女性等亚群体中开展更详细的工作,以确定她们的具体需求。