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在标准实践中采用以患者为中心的护理:患者报告结局量表迈向特定疾病时代。

Adopting patient-centered care in standard practice: PROMs moving toward disease-specific era.

作者信息

El Miedany Y

机构信息

Rheumatology, Darent Valley Hospital, Dartford, Kent, UK and Department of Rheumatology, Ain Shams University, Cairo, Egypt.

出版信息

Clin Exp Rheumatol. 2014 Sep-Oct;32(5 Suppl 85):S-40-6. Epub 2014 Oct 30.

Abstract

Past discussions about the challenges of using patient-reported outcome measures (PROMs) in clinical practice included clinicians' skepticism, time and resources for the implementation, validity of the PROMs, unfamiliarity with the interpretation of PROMs, and costs of implementation. However, these concerns are diminishing now as PROMs has confirmed its place in the management of patients with inflammatory arthritic conditions where there is no surrogate outcome measure available to capture the patient's well-being and response to treatment. Therefore, PROMs has been endorsed as a primary outcome in clinical trials. PROMs directly measure treatment benefit beyond survival, disease, and physiologic markers, and are often the outcomes of greatest importance to patients. Recently, PROMs has progressed from the generic phase into a 'disease-specific' era. This article will discuss the evolving role of PROMs in the assessment and management of patients suffering from inflammatory arthritic conditions and how it can help in transforming patient-centered care concept into reality.

摘要

过去关于在临床实践中使用患者报告结局测量指标(PROMs)的挑战的讨论包括临床医生的怀疑态度、实施所需的时间和资源、PROMs的有效性、对PROMs解释的不熟悉以及实施成本。然而,随着PROMs在炎症性关节炎患者管理中确立了其地位,这些担忧如今正在减少,因为在该领域没有替代结局测量指标可用于衡量患者的健康状况和对治疗的反应。因此,PROMs已被认可为临床试验中的主要结局。PROMs直接测量生存、疾病和生理指标之外的治疗益处,并且通常是对患者最重要的结局。最近,PROMs已从通用阶段进入“疾病特异性”时代。本文将讨论PROMs在炎症性关节炎患者评估和管理中不断演变的作用,以及它如何有助于将以患者为中心的护理理念变为现实。

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