接受β-干扰素治疗的伊朗多发性硬化症患者的知识与态度评估
Knowledge and attitude assessment of Iranian multiple sclerosis patients receiving interferon beta.
作者信息
Abolfazli Roya, Elyasi Azam, Javadi Mohammad Reza, Gholami Kheirollah, Torkamandi Hassan, Amir-Shahkarami Mohammad, Etemadifar Masoud, Nasr Zahra
机构信息
Department of Neurology, School of Medicine, Amiralam Hospital, Tehran University of Medical Sciences, Tehran, Iran.
Department of Clinical Pharmacy, School of Pharmacy, Tehran University of Medical Sciences, Tehran, Iran.
出版信息
Iran J Neurol. 2014 Jul 4;13(3):160-7.
BACKGROUND
Multiple sclerosis (MS) patients permanently confronted with serious challenges from treatment regimen. Developing a new questionnaire in MS management, through evaluation of patients' perspectives and knowledge regarding treatment will help to identify the sources of tension, and to build a therapeutic alliance. We purposed to describe MS patients' understanding of their treatments.
METHODS
About 425 completed and returned questionnaire were assessed of a total of 500 recruited MS patients. The knowledge of correct using interferon-beta (IFN-β) and attitude toward medical care were assessed using self-reported questionnaires consisted of 25 items with validity of multidisciplinary panel and pre-testing on 20 patients.
RESULTS
Knowledge about IFN-β therapy was very low; however, attitude was at a high level. Female patients, self-injection ability, higher educational level, normal functional status, delay from the start of diagnostic workup to definite diagnosis, and being younger were related to a higher level of knowledge. Attitude was associated with functional status, family history of disease and the summary of knowledge variable.
CONCLUSION
Developing educational interventions are needed for MS patients regarding to their low levels of knowledge.
背景
多发性硬化症（MS）患者长期面临治疗方案带来的严峻挑战。通过评估患者对治疗的看法和知识，制定一份新的MS管理调查问卷，将有助于找出紧张关系的根源，并建立治疗联盟。我们旨在描述MS患者对其治疗的理解。
方法
在总共招募的500名MS患者中，评估了约425份填写并返回的问卷。使用由25个项目组成的自填问卷评估正确使用β-干扰素（IFN-β）的知识和对医疗护理的态度，该问卷经多学科小组验证并在20名患者中进行了预测试。
结果
关于IFN-β治疗的知识水平很低；然而，态度处于较高水平。女性患者、自我注射能力、较高的教育水平、正常的功能状态、从诊断检查开始到明确诊断的延迟时间以及较年轻与较高的知识水平相关。态度与功能状态、疾病家族史和知识变量总结相关。
结论
鉴于MS患者知识水平较低，需要开展教育干预措施。
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