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在实验室、临床床边与办公室之间:神经科学家与伦理学家建立沟通桥梁的必要性。

Between the bench, the bedside and the office: The need to build bridges between working neuroscientists and ethicists.

作者信息

Brosnan Caragh, Cribb Alan

机构信息

School of Humanities & Social Science, University of Newcastle, Australia; Centre for Public Policy Research, King's College London, UK.

出版信息

Clin Ethics. 2014 Dec;9(4):113-119. doi: 10.1177/1477750914558549.

DOI:10.1177/1477750914558549
PMID:25473379
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4246054/
Abstract

This paper presents findings from an empirical study that explored the meaning of ethics in the everyday work of neuroscientists. Observation and interviews were carried out in one neuroscience research group that was involved in bench-to-bedside translational research. We focus here specifically on the scientists' perceptions of bioethics. Interviewees were often unfamiliar with bioethics as a discipline, particularly the more junior members of the group. Those who were aware of its existence largely viewed it as something distant from them, and as either too abstract, not relevant or an alien imposition on their work. Some interviewees themselves pointed to the need for better 'bridge building' between ethical principles and real-world examples drawn from scientific practice, and we argue that this space is where a more empirically grounded ethics may be useful in terms of actually engaging scientists at both the bench and the bedside.

摘要

本文展示了一项实证研究的结果,该研究探讨了伦理在神经科学家日常工作中的意义。研究在一个参与从实验室到临床转化研究的神经科学研究团队中进行了观察和访谈。我们在此特别关注科学家对生物伦理的看法。受访者通常对生物伦理这门学科并不熟悉,尤其是该团队中较为年轻的成员。那些知晓其存在的人大多认为它与自己相距甚远,要么过于抽象、不相关,要么是对他们工作的一种外来强加。一些受访者自己指出,需要在伦理原则与源自科学实践的现实案例之间更好地“架桥”,并且我们认为,在这个领域,一种更基于实证的伦理对于切实让实验室和临床的科学家参与进来可能会有所帮助。

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本文引用的文献

1
Neuroscientists' everyday experiences of ethics: the interplay of regulatory, professional, personal and tangible ethical spheres.神经科学家日常的伦理体验:监管、专业、个人和有形伦理领域的相互作用。
Sociol Health Illn. 2013 Nov;35(8):1133-48. doi: 10.1111/1467-9566.12026. Epub 2013 Feb 11.
2
Primary care ethics: a body of literature and a community of scholars?初级保健伦理学:一个文献体系和一个学者群体?
J R Soc Med. 2011 Mar;104(3):94-6. doi: 10.1258/jrsm.2010.100353.
3
Ethical boundary-work in the infertility clinic.不孕不育诊所中的伦理边界工作。
Sociol Health Illn. 2011 May;33(4):570-85. doi: 10.1111/j.1467-9566.2010.01308.x. Epub 2011 Jan 12.
4
Neuroscientists need neuroethics teaching.
Science. 2009 Jul 10;325(5937):147. doi: 10.1126/science.325_147a.
5
Discourses of dislike: responses to ethics education policies by life scientists in the U.K., Italy, and the U.S.厌恶之辞:英国、意大利和美国生命科学家对伦理教育政策的回应
J Empir Res Hum Res Ethics. 2009 Jun;4(2):49-57. doi: 10.1525/jer.2009.4.2.49.
6
Towards the applied: the construction of ethical positions in stem cell translational research.
Med Health Care Philos. 2008 Sep;11(3):351-61. doi: 10.1007/s11019-007-9114-y. Epub 2007 Dec 13.
7
Empirical neuroethics. Can brain imaging visualize human thought? Why is neuroethics interested in such a possibility?实证神经伦理学。脑部成像能使人类思维可视化吗?为何神经伦理学对这种可能性感兴趣?
EMBO Rep. 2007 Jul;8 Spec No(Suppl 1):S57-60. doi: 10.1038/sj.embor.7401007.
8
Ethical boundary-work in the embryonic stem cell laboratory.胚胎干细胞实验室中的伦理界限工作
Sociol Health Illn. 2006 Sep;28(6):732-48. doi: 10.1111/j.1467-9566.2006.00539.x.
9
Centering bioethics.聚焦生物伦理学。
Hastings Cent Rep. 2000 Jan-Feb;30(1):22-9.