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国际皮肤病学结局测量研究组:皮肤病患者中心结局测量指标的制定。

The International Dermatology Outcome Measures Group: formation of patient-centered outcome measures in dermatology.

机构信息

Department of Dermatology, Tufts Medical Center, Boston, Massachusetts; Tufts University School of Medicine, Boston, Massachusetts.

Department of Dermatology, Tufts Medical Center, Boston, Massachusetts; Boston University School of Medicine, Boston, Massachusetts.

出版信息

J Am Acad Dermatol. 2015 Feb;72(2):345-8. doi: 10.1016/j.jaad.2014.11.002. Epub 2014 Dec 6.


DOI:10.1016/j.jaad.2014.11.002
PMID:25486914
Abstract

As quality standards are increasingly in demand throughout medicine, dermatology needs to establish outcome measures to quantify the effectiveness of treatments and providers. The International Dermatology Outcome Measures Group was established to address this need. Beginning with psoriasis, the group aims to create a tool considerate of patients and providers using the input of all relevant stakeholders in assessment of disease severity and response to treatment. Herein, we delineate the procedures through which consensus is being reached and the future directions of the project.

摘要

随着质量标准在医学领域的需求日益增长,皮肤科需要建立衡量治疗效果和提供者水平的结果评估标准。为此,国际皮肤病学结果测量工作组应运而生。该工作组以银屑病为切入点,旨在创建一个既考虑到患者又考虑到提供者的工具,同时还将所有相关利益方纳入到疾病严重程度和治疗反应的评估中。本文详细介绍了达成共识的程序以及项目的未来方向。

相似文献

[1]
The International Dermatology Outcome Measures Group: formation of patient-centered outcome measures in dermatology.

J Am Acad Dermatol. 2014-12-6

[2]
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[3]
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[4]
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[5]
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[6]
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[7]
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[8]
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[9]
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[10]
Measures of psoriatic arthritis: Tender and Swollen Joint Assessment, Psoriasis Area and Severity Index (PASI), Nail Psoriasis Severity Index (NAPSI), Modified Nail Psoriasis Severity Index (mNAPSI), Mander/Newcastle Enthesitis Index (MEI), Leeds Enthesitis Index (LEI), Spondyloarthritis Research Consortium of Canada (SPARCC), Maastricht Ankylosing Spondylitis Enthesis Score (MASES), Leeds Dactylitis Index (LDI), Patient Global for Psoriatic Arthritis, Dermatology Life Quality Index (DLQI), Psoriatic Arthritis Quality of Life (PsAQOL), Functional Assessment of Chronic Illness Therapy-Fatigue (FACIT-F), Psoriatic Arthritis Response Criteria (PsARC), Psoriatic Arthritis Joint Activity Index (PsAJAI), Disease Activity in Psoriatic Arthritis (DAPSA), and Composite Psoriatic Disease Activity Index (CPDAI).

Arthritis Care Res (Hoboken). 2011-11

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[2]
Expert Consensus on the Use of Prognostic Gene Expression Profiling Tests for the Management of Cutaneous Melanoma: Consensus from the Skin Cancer Prevention Working Group.

Dermatol Ther (Heidelb). 2022-4

[3]
International Dermatology Outcome Measures (IDEOM): Report from the 2020 Annual Meeting.

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[4]
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J Eur Acad Dermatol Venereol. 2021-9

[5]
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[6]
Report from the International Dermatology Outcome Measures Initiative.

J Investig Dermatol Symp Proc. 2020-11

[7]
Clinical outcome measures and scoring systems used in prospective studies of port wine stains: A systematic review.

PLoS One. 2020-7-2

[8]
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J Clin Aesthet Dermatol. 2019-4

[9]
Physician-Centered Outcomes for Skin Cancer Treatment: A Single-Day Modified Delphi Process to Assess the Importance of Themes in Skin Cancer Management.

Dermatol Surg. 2019-7

[10]
Patient-Centered Outcomes for Skin Cancer Management: Utilization of a Patient Delphi Process to Identify Important Treatment Themes.

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