• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

相似文献

1
Report from the International Dermatology Outcome Measures Initiative.国际皮肤病学结局措施倡议报告。
J Investig Dermatol Symp Proc. 2020 Nov;20(1):S80-S83. doi: 10.1016/j.jisp.2020.05.004.
2
Forging the Future: 2018 Alopecia Areata Research Summit Summary Report.铸就未来:2018 斑秃研究峰会总结报告。
J Investig Dermatol Symp Proc. 2020 Nov;20(1):S1-S5. doi: 10.1016/j.jisp.2020.05.005.
3
International Dermatology Outcome Measures (IDEOM): Report from the 2021 Annual Meeting.国际皮肤病学结局测量(IDEOM):2021 年年会报告。
J Drugs Dermatol. 2022 Aug 1;21(8):867-874. doi: 10.36849/JDD.6974.
4
International Dermatology Outcome Measures (IDEOM): Report from the 2020 Annual Meeting.国际皮肤病学结局测量指标(IDEOM):2020 年年会报告。
Dermatology. 2022;238(3):430-437. doi: 10.1159/000518966. Epub 2021 Sep 17.
5
International Dermatology Outcome Measures (IDEOM) - Report from the 2022 Annual Meeting.国际皮肤病学疗效评估指标(IDEOM)——2022年年会报告
J Drugs Dermatol. 2023 Dec 1;22(12):1153-1159. doi: 10.36849/JDD.7615.
6
The International Dermatology Outcome Measures Group: formation of patient-centered outcome measures in dermatology.国际皮肤病学结局测量研究组:皮肤病患者中心结局测量指标的制定。
J Am Acad Dermatol. 2015 Feb;72(2):345-8. doi: 10.1016/j.jaad.2014.11.002. Epub 2014 Dec 6.
7
Consensus on the treatment of hidradenitis suppurativa - Brazilian Society of Dermatology.化脓性汗腺炎治疗共识 - 巴西皮肤病学会
An Bras Dermatol. 2019 Apr;94(2 Suppl 1):7-19. doi: 10.1590/abd1806-4841.20198607. Epub 2019 Jun 3.
8
Report of the Skin Research Workgroups from the GRAPPA 2019 Annual Meeting.GRAPPA2019 年会皮肤研究工作组报告。
J Rheumatol Suppl. 2020 Jun;96:36-40. doi: 10.3899/jrheum.200125.
9
Investigator and Patient Global Assessment Measures for Psoriasis Clinical Trials: A Systematic Review on Measurement Properties from the International Dermatology Outcome Measures (IDEOM) Initiative.银屑病临床试验的研究者和患者整体评估测量指标:来自国际皮肤病学结局测量(IDEOM)倡议的测量特性的系统评价。
Am J Clin Dermatol. 2020 Jun;21(3):323-338. doi: 10.1007/s40257-019-00496-w.
10
Quality of life measurement in hidradenitis suppurativa: position statement of the European Academy of Dermatology and Venereology task forces on Quality of Life and Patient-Oriented Outcomes and Acne, Rosacea and Hidradenitis Suppurativa.化脓性汗腺炎生活质量的测量:欧洲皮肤病学会和性病学会生活质量和以患者为中心的结局以及痤疮、酒渣鼻和化脓性汗腺炎工作组的立场声明。
J Eur Acad Dermatol Venereol. 2019 Sep;33(9):1633-1643. doi: 10.1111/jdv.15519. Epub 2019 Apr 29.

引用本文的文献

1
Nail Psoriasis and Quality-of-Life Measurement in Clinical Trials: Call for the Use of Nail-Specific Instruments.指甲银屑病与临床试验中的生活质量评估:呼吁使用指甲专用工具。
Am J Clin Dermatol. 2021 Nov;22(6):747-755. doi: 10.1007/s40257-021-00622-7. Epub 2021 Aug 12.

本文引用的文献

1
A provider global assessment quality measure for clinical practice for inflammatory skin disorders.用于评估炎症性皮肤疾病临床实践的提供者全球评估质量指标。
J Am Acad Dermatol. 2019 Mar;80(3):823-828. doi: 10.1016/j.jaad.2018.09.017. Epub 2018 Sep 20.
2
Achieving international consensus on the assessment of psoriatic arthritis in psoriasis clinical trials: an International Dermatology Outcome Measures (IDEOM) initiative.实现银屑病临床试验中对银屑病关节炎评估的国际共识:国际皮肤病学结局测量(IDEOM)倡议。
Arch Dermatol Res. 2018 Nov;310(9):701-710. doi: 10.1007/s00403-018-1855-3. Epub 2018 Aug 25.
3
Are Your Patients Satisfied A Systematic Review of Treatment Satisfaction Measures in Psoriasis.你的患者满意吗?银屑病治疗满意度测量的系统评价
Dermatology. 2018;234(5-6):157-165. doi: 10.1159/000490413. Epub 2018 Aug 17.
4
Identifying a Core Domain Set to Assess Psoriasis in Clinical Trials.确定用于评估临床试验中银屑病的核心领域集。
JAMA Dermatol. 2018 Oct 1;154(10):1137-1144. doi: 10.1001/jamadermatol.2018.1165.
5
A core domain set for hidradenitis suppurativa trial outcomes: an international Delphi process.化脓性汗腺炎临床试验结局的核心领域集:一项国际 Delphi 研究。
Br J Dermatol. 2018 Sep;179(3):642-650. doi: 10.1111/bjd.16672. Epub 2018 Jul 5.
6
The COMET Handbook: version 1.0.《COMET手册:第1.0版》
Trials. 2017 Jun 20;18(Suppl 3):280. doi: 10.1186/s13063-017-1978-4.
7
Protocol for the development of a core domain set for hidradenitis suppurativa trial outcomes.用于开发化脓性汗腺炎试验结局核心领域集的方案。
BMJ Open. 2017 Feb 20;7(2):e014733. doi: 10.1136/bmjopen-2016-014733.
8
Development of a Quality-of-Life Measure for Hidradenitis Suppurativa.化脓性汗腺炎生活质量测量方法的开发。
J Cutan Med Surg. 2017 Mar/Apr;21(2):152-155. doi: 10.1177/1203475416677721. Epub 2016 Nov 12.
9
Psoriatic Arthritis and Burden of Disease: Patient Perspectives from the Population-Based Multinational Assessment of Psoriasis and Psoriatic Arthritis (MAPP) Survey.银屑病关节炎与疾病负担:基于人群的银屑病和银屑病关节炎多国评估(MAPP)调查中的患者观点
Rheumatol Ther. 2016 Jun;3(1):91-102. doi: 10.1007/s40744-016-0029-z. Epub 2016 Feb 29.
10
How to select outcome measurement instruments for outcomes included in a "Core Outcome Set" - a practical guideline.如何为“核心结局集”中包含的结局选择结局测量工具——实用指南
Trials. 2016 Sep 13;17(1):449. doi: 10.1186/s13063-016-1555-2.

国际皮肤病学结局措施倡议报告。

Report from the International Dermatology Outcome Measures Initiative.

机构信息

Department of Dermatology, Harvard Medical School, Brigham and Women's Hospital, Boston, Massachusetts, USA.

Department of Dermatology and Medicine, Division of Rheumatology, Harvard Medical School, Brigham and Women's Hospital, Boston, Massachusetts, USA.

出版信息

J Investig Dermatol Symp Proc. 2020 Nov;20(1):S80-S83. doi: 10.1016/j.jisp.2020.05.004.

DOI:10.1016/j.jisp.2020.05.004
PMID:33099394
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9393900/
Abstract

The International Dermatology Outcome Measures is a nonprofit organization dedicated to developing evidence-based, patient-centered outcome measures for dermatologic conditions. At the 2018 Alopecia Areata Research Summit, Dr Gottlieb, President of the International Dermatology Outcome Measures, presented an overview of their work in psoriasis, hidradenitis suppurativa, acne, and eczema and discussed the potential areas of mutual interest with the National Alopecia Areata Foundation. Herein, we present a summary of the topics discussed.

摘要

国际皮肤病学结局指标组织是一个致力于开发基于证据、以患者为中心的皮肤病结局指标的非营利组织。在 2018 年斑秃研究峰会上,国际皮肤病学结局指标组织主席 Gottlieb 博士介绍了他们在银屑病、化脓性汗腺炎、痤疮和湿疹方面的工作概况,并讨论了与国家斑秃基金会的潜在共同关注领域。本文总结了讨论的主题。