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风湿病学实践中的全球挑战与机遇:风湿和肌肉骨骼疾病世界论坛白皮书

The global challenges and opportunities in the practice of rheumatology: white paper by the World Forum on Rheumatic and Musculoskeletal Diseases.

作者信息

Al Maini Mustafa, Adelowo Femi, Al Saleh Jamal, Al Weshahi Yousef, Burmester Gerd-Rüdiger, Cutolo Maurizio, Flood Joseph, March Lyn, McDonald-Blumer Heather, Pile Kevin, Pineda Carlos, Thorne Carter, Kvien Tore K

机构信息

Mafraq Hospital, Abu Dhabi, United Arab Emirates,

出版信息

Clin Rheumatol. 2015 May;34(5):819-29. doi: 10.1007/s10067-014-2841-6. Epub 2014 Dec 14.

Abstract

Rheumatic and musculoskeletal diseases (RMDs) represent a multitude of degenerative, inflammatory and auto-immune conditions affecting millions of people worldwide. Persons with these diseases may potentially experience severe chronic pain, joint damage, increasing disability and even death. With an increasingly ageing population, the prevalence and burden of RMDs are predicted to increase, placing greater demands on the global practice of rheumatology and related healthcare budgets. Effective treatment of RMDs currently faces a number of challenges in both the developed and developing world, and individual countries may face more specific local challenges. However, limited understanding of the burden of RMDs amongst public health professionals and policy-makers means that these diseases are often not considered a public health priority. The objective of this review is to increase awareness of the RMDs and to identify opportunities to address RMD challenges on both a local and global scale. On 26 September 2014, rheumatology experts from five different continents met at the World Forum on Rheumatic and Musculoskeletal Diseases (WFRMD) to discuss and identify some key challenges for the RMDs community today. The outcomes are presented in this review, focusing on access to rheumatology services, diagnostics and therapies, rheumatology education and training and on clinical trials, as well as investigator-initiated and epidemiological research. The long-term vision of the WFRMD is to increase perception of the RMDs as a major burden to society and to explore potential opportunities to improve global and local RMD care.

摘要

风湿性和肌肉骨骼疾病(RMDs)涵盖了多种退行性、炎症性和自身免疫性疾病,影响着全球数百万人。患有这些疾病的人可能会经历严重的慢性疼痛、关节损伤、残疾加剧甚至死亡。随着人口老龄化加剧,预计RMDs的患病率和负担将会增加,这对全球风湿病医疗实践和相关医疗保健预算提出了更高要求。目前,无论是在发达国家还是发展中国家,RMDs的有效治疗都面临着诸多挑战,个别国家可能还面临更具地方特色的挑战。然而,公共卫生专业人员和政策制定者对RMDs负担的了解有限,这意味着这些疾病往往不被视为公共卫生的优先事项。本综述的目的是提高对RMDs的认识,并确定在地方和全球范围内应对RMDs挑战的机会。2014年9月26日,来自五大洲的风湿病专家齐聚世界风湿性和肌肉骨骼疾病论坛(WFRMD),讨论并确定当今RMDs领域的一些关键挑战。本综述介绍了会议成果,重点关注风湿病服务的可及性、诊断和治疗、风湿病教育与培训、临床试验以及研究者发起的研究和流行病学研究。WFRMD的长期愿景是提高人们对RMDs作为社会重大负担的认识,并探索改善全球和地方RMDs护理的潜在机会。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3e70/4408363/3073ab3951af/10067_2014_2841_Fig1_HTML.jpg

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