Hållstam Andrea, Stålnacke Britt Marie, Svensen Christer, Löfgren Monika
Department of Clinical Science and Education, Södersjukhuset, Karolinska Institutet, 11883 Stockholm, Sweden.
J Rehabil Med. 2015 Mar;47(3):242-8. doi: 10.2340/16501977-1926.
To explore patients' experiences of activity, participation and quality of life one year after a rehabilitation programme for chronic pain, and to determine the impact of the programme on their current life situation.
Qualitative study with emergent design.
The 14 informants were patients with chronic pain who had participated in rehabilitation at a pain clinic. Individual semi-structured interviews were analysed with inductive, qualitative content analysis.
The core theme "Change is possible" and the themes "A life ruled by pain" (the situation before rehabilitation), "The penny's dropped" (experience during rehabilitation) and "Live a life, not only survive" (the situation at the time of the interviews) emerged from the data. These themes represent a process through which, during and after rehabilitation, the informants integrated earlier disabling symptoms into a functioning lifestyle.
Individuals living with disabling chronic pain can create a better life by integrating their illness. A prerequisite is that healthcare professionals empower patients to develop the strength to take responsibility for their daily lives. This process is facilitated by skills to reduce pain and handle life, plus support from significant others.
探讨慢性疼痛康复计划实施一年后患者在活动、参与及生活质量方面的体验,并确定该计划对其当前生活状况的影响。
采用新兴设计的定性研究。
14名研究对象为曾在疼痛诊所接受康复治疗的慢性疼痛患者。采用归纳性定性内容分析法对个体半结构式访谈进行分析。
数据中出现了核心主题“改变是可能的”,以及主题“受疼痛支配的生活”(康复前的状况)、“恍然大悟”(康复期间的体验)和“要生活,而非仅仅生存”(访谈时的状况)。这些主题代表了一个过程,在康复期间及康复后,研究对象将先前导致残疾的症状融入到一种正常生活方式中。
患有导致残疾的慢性疼痛的个体可以通过接纳自身疾病创造更美好的生活。一个前提条件是医疗保健专业人员要赋予患者力量,使其培养出对自己日常生活负责的能力。减轻疼痛和应对生活的技能以及重要他人的支持有助于推动这一过程。