Roberts Jodie I, Hrazdil Chantelle, Wiebe Samuel, Sauro Khara, Vautour Michelle, Wiebe Natalie, Jetté Nathalie
From the Department of Clinical Neurosciences and Hotchkiss Brain Institute (J.I.R., C.H., S.W., K.S., M.V., N.W., N.J.), and Department of Community Health Sciences and O'Brien Institute for Public Health (J.I.R., S.W., K.S., N.J.), University of Calgary; and Department of Medicine (C.H.), Division of Neurology, University of British Columbia, Vancouver, Canada.
Neurology. 2015 Jan 13;84(2):159-66. doi: 10.1212/WNL.0000000000001127. Epub 2014 Dec 10.
In the current study, we aim to assess potential neurologist-related barriers to epilepsy surgery among Canadian neurologists.
A 29-item, pilot-tested questionnaire was mailed to all neurologists registered to practice in Canada. Survey items included the following: (1) type of medical practice, (2) perceptions of surgical risks and benefits, (3) knowledge of existing practice guidelines, and (4) barriers to surgery for patients with epilepsy. Neurologists who did not complete the questionnaire after the initial mailing were contacted a second time by e-mail, fax, or telephone. After this reminder, the survey was mailed a second time to any remaining nonresponders.
In total, 425 of 796 neurologists returned the questionnaire (response rate 53.5%). Respondents included 327 neurologists who followed patients with epilepsy in their practice. More than half (56.6%) of neurologists required patients to be drug-resistant and to have at least one seizure per year before considering surgery, and nearly half (48.6%) failed to correctly define drug-resistant epilepsy. More than 75% of neurologists identified inadequate health care resources as the greatest barrier to surgery for patients with epilepsy.
A substantial proportion of Canadian neurologists are unaware of recommended standards of practice for epilepsy surgery. Access also appears to be a significant barrier to epilepsy surgery and surgical evaluation. As a result, we are concerned that patients with epilepsy are receiving inadequate care. A greater emphasis must be placed on knowledge dissemination and ensuring that the infrastructure and personnel are in place to allow patients to have timely access to this evidence-based treatment.
在本研究中,我们旨在评估加拿大神经科医生中与癫痫手术相关的潜在障碍。
一份经过预测试的包含29个条目的问卷被邮寄给所有在加拿大注册执业的神经科医生。调查项目包括:(1)医疗执业类型;(2)对手术风险和益处的看法;(3)对现有实践指南的了解;(4)癫痫患者手术的障碍。初次邮寄后未完成问卷的神经科医生通过电子邮件、传真或电话再次联系。在这次提醒之后,问卷再次邮寄给任何仍未回复的人。
796名神经科医生中共有425人返回了问卷(回复率53.5%)。受访者包括327名在其执业中跟踪癫痫患者的神经科医生。超过一半(56.6%)的神经科医生要求患者在考虑手术前具有药物难治性且每年至少发作一次,近一半(48.6%)未能正确定义药物难治性癫痫。超过75%的神经科医生认为医疗保健资源不足是癫痫患者手术最大的障碍。
相当一部分加拿大神经科医生不了解癫痫手术推荐的实践标准。获得手术和手术评估的机会似乎也是癫痫手术的一个重大障碍。因此,我们担心癫痫患者得到的治疗不足。必须更加重视知识传播,并确保具备基础设施和人员,以便患者能够及时获得这种基于证据的治疗。