Sankar Andrea, Luborsky Mark
Professor of anthropology and director of medical anthropology in the Department of Anthropology at Wayne State University, Detroit, Michigan.
Professor of anthropology and gerontology and director of the Center for Health Disparities Research at the Institute of Gerontology, Wayne State University.
Hum Organ. 2003 Summer;62(2):153-165. doi: 10.17730/humo.62.2.695j11t5pmpmljr2.
With the advent of antiretroviral therapy, HIV has become a chronic illness for those who have access to the medication. But unlike our understanding of acute disease experience which can be grasped within parameters defined by categories of medical diagnosis and treatment, understanding the experience of chronic illness requires that we expand our analytic frame to include variables and perspectives created by the beliefs, behaviors, context, and culture of the participants. Drawing on focus groups conducted among African American, Hispanic, and white people with HIV in Detroit, Michigan, we show that expressions of needs related to the lived experience of HIV vary among racial and ethnic groups and between genders, resulting in an experientially distinct set of needs.
随着抗逆转录病毒疗法的出现，对于那些能够获得这种药物的人来说，艾滋病毒已成为一种慢性病。但与我们对急性疾病体验的理解（可以在医学诊断和治疗类别所定义的参数范围内把握）不同，理解慢性病体验要求我们扩展分析框架，纳入由参与者的信念、行为、背景和文化所产生的变量和观点。通过对密歇根州底特律市非裔美国人、西班牙裔和感染艾滋病毒的白人进行焦点小组访谈，我们发现，与艾滋病毒生活体验相关的需求表达在不同种族和族裔群体以及不同性别之间存在差异，从而产生了一组体验上截然不同的需求。
