Kellezi Blerina, Beckett Kate, Earthy Sarah, Barnes Jo, Sleney Jude, Clarkson Julie, Regel Stephen, Jones Trevor, Kendrick Denise
Division of Primary Care, School of Medicine, Nottingham University, University Park, Nottingham, UK.
University of the West of England, Research and Innovation, University Hospitals Bristol NHS Foundation Trust, Education Centre, Bristol, UK.
Injury. 2015 Apr;46(4):564-71. doi: 10.1016/j.injury.2014.11.035. Epub 2014 Dec 9.
To explore information needs of unintentional injury patients and their carers over time, across services, and how such needs are met from the perspectives of patients, carers and service providers.
Qualitative nested study within a multi-centre longitudinal study quantifying psycho-social, physical, occupational outcomes and service use and costs following a range of unintentional injuries. Semi-structured interviews conducted with 45 patients during the first year post injury, 18 of their carers and 40 providers of services.
Patients and carers needed information about the nature and severity of injury, prognosis, self-management and further services. Information needs changed over time with the biggest difficulties being during transfer from primary to secondary care. Barriers to information provision included service providers' time limitations and uncertainty around information provision, and patients' reluctance to ask for information or inability to process it. Suggested improvements included provision of reassurance as well as factual information, information about further services, earlier follow-up, increased appointment times and greater involvement of families where appropriate.
The information needs of patients and carers post injury change with time and there are a number of ways to remove gaps and barriers in current provision to meet such needs.
Providing information on injury management, prognosis and available services and reassurance at each stage of the recovery process in secondary care and when transferring to primary care would be helpful for patients and carers. A follow-up contact soon after discharge and the opportunity to ask questions could be beneficial. Better information about the patient's needs and ways they can help could help carers fulfil their caring role.
探讨意外伤害患者及其照顾者在不同时间、不同服务环境下的信息需求，以及从患者、照顾者和服务提供者的角度来看这些需求是如何得到满足的。
在一项多中心纵向研究中进行定性嵌套研究，该研究对一系列意外伤害后的心理社会、身体、职业结果以及服务使用和成本进行量化。在受伤后的第一年对45名患者、其中18名患者的照顾者以及40名服务提供者进行了半结构化访谈。
患者和照顾者需要有关损伤的性质和严重程度、预后、自我管理以及进一步服务的信息。信息需求随时间而变化，最大的困难发生在从初级护理向二级护理的过渡期间。信息提供的障碍包括服务提供者的时间限制和信息提供的不确定性，以及患者不愿询问信息或无法处理信息。建议的改进措施包括提供安慰以及事实性信息、有关进一步服务的信息、更早的随访、增加预约时间以及在适当情况下让家庭更多地参与。
受伤后患者和照顾者的信息需求会随时间变化，并且有多种方法可以消除当前信息提供中的差距和障碍以满足此类需求。
在二级护理以及转至初级护理的恢复过程的每个阶段，提供有关损伤管理、预后和可用服务的信息以及安慰，对患者和照顾者会有所帮助。出院后不久进行随访联系并提供提问机会可能会有益。更好地了解患者的需求以及他们可以提供帮助的方式，有助于照顾者履行其照顾职责。
